Finding information

We spoke to trans and gender-diverse young people about the sources of information that they found most useful in their healthcare journeys. The young people we spoke to found information from a range of different places:

  • Other people in the trans community
  • Online
  • NHS, doctors and other healthcare professionals and;
  • Books, reports and journals

Other people in the trans community

Many of the trans and gender-diverse young people we spoke to found information through other members of the trans community. This was sometimes a friend, a coworker or people they met through an LGBTQ+ group or trans charity. Sometimes it was through seeing chatting to other trans people online.

Max talked about the benefit of having trans coworkers working for an LGBTQ+ charity and how he asked them for information.

Henry agreed “a lot of that information I got second-hand from people I knew… It wasn’t really from the healthcare professionals themselves.”

Rosa said, “Most of the understanding I got of trans healthcare was from interacting with other trans people after I’d come out and just seeing them talk about their experiences”. Anderson also said that getting information “was very much word of mouth”.

Tori talks about reaching out to a trans friend at work and gaining a better insight into her identity.

Age at interview 34

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Noelle thought this could be because “trans people themselves who had gone through the process had like a much better idea of how it went”. CJ added “[trans people] have to become the experts about our own treatment pathways, right from jump.”

Young people felt that the trans community were often able to share useful information about healthcare they couldn’t get from anywhere else. This included information about medication, side effects, waiting times, and experiences of medical clinics.

Begam talks about accessing a local LGBT centre and the struggle to find someone trans to talk to.

Age at interview 22

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Jack talked to his friend who shared his experiences at “the clinics” and he then knew what to expect with the referral process and waiting times. Evelyn spoke about her friend sharing information about the side effects of hormone blockers “before I got onto blockers, which helped me learn a few things about side effects.”

Noelle found helpful information about “waiting times and how you can often have to jump through hoops just to get a referral.”

Summer feels “there is a lot of misinformation in the trans community” and shares her experience of attending trans groups.

Age at interview 25

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Bailey found it useful to hear about other’s experiences to prepare for their own treatment so that “things that they’ve gone through, cause then I’m like, that might happen [to me]”. At the same time, some young people talked about the risk of getting misinformation when talking to other people. They felt it’s important to weigh up information and check it’s true.

Max said that they got information from coworkers and Facebook but that they “always take it with a grain of salt because some of them you know, well-intentioned but probably don’t have the best information”. Cassie shared how she felt she “bought into the lie” of soy and phytoestrogens. She said, “I used to drink loads of soy, ‘cos I had this, like, desperate desire to feminise”. She felt “it does fuck all.”

Bay talks about the “contradicting information” from other trans people’s experiences.

Age at interview 28

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Online sources

Young people told us they had found very useful information online. This could include other young trans people talking about their lives on social media or blogs such as Tumblr or forums. Sophie said, “I’ve felt as though I’ve had to do a lot of my own research… looking at different websites.” Jay said, “The internet has been a precious resource for me… There’s nowhere that I could have those conversations in real life.”

Many used YouTube to find out about trans healthcare and see others in a similar situation. Tom said, “I remember seeing this first video of this guy, and he was explaining [that] he transitioned after going through puberty.” Tom felt he could relate to the person and his explanation of his struggles and emotions.

Rahul said some YouTubers share information that is old or about what happens in other countries. He preferred Facebook groups where you can ask targeted questions to people. The information is “much more instant and relevant to your needs.”

M says, “Information related to trans healthcare is difficult [because] you have to be your own healthcare advisor”.

Age at interview 25

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CJ shared that the Gender Identity Research and Education Society (GIRES) “are a fantastic [online] resource.” They also said Gendered Intelligence and Mermaids had useful online resources. They added, “reading message boards and YouTube comments” was also helpful.

Sally and Kat both found information on Twitter and Reddit saying “they have very good information”. Sally also mentioned Discord for learning information. Michelle reflected back on 2012 and 2013 where the only information she could find was “mostly through Facebook groups, forums and asking questions on Reddit”.

Jack said that he “went to the GP armed with knowledge that I’d read on trans support groups and a transmasculine Tumblr page that was really informative”.

M, Declan, Ari and Max all said that transmasculine Tumblr pages are a helpful source of healthcare information. Ari stated “they have resources on everything from name changes to the GP, to which clinic has the shortest waiting time.”

Freya talks about weighing up online information about trans healthcare with information from health professionals.

Age at interview 21

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Cassie talks about the risk of misinformation with online communities.

Age at interview 23

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NHS and healthcare professionals

The young people we spoke to also talked about the information they got from the NHS and healthcare professionals. Ezio found “different NHS files” online but they “were shrouded in… words that I didn’t really understand… medical and admin terms”.

Reuben said he “went on the NHS website and it wasn’t very useful”. He said “it was quite clinical in the way they sort of spoke about things and there was no clear path on what to do and how to get there.”

Rahul found “a little pamphlet on hormone treatment” which was “very general and vague”. But that it was “probably my main source because I considered that an official piece of unbiased information.” Noelle said she “relied a lot more on forums than NHS official pages.” She felt that NHS processes were complicated and unclear.

Jessica says “the internet” and Gender GP has been “a big resource”. She said “they’ve always been there to give advice and support”.

Age at interview 17

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Theo shares an encounter with a misinformed healthcare professional.

Age at interview 23

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Erion shares his excitement for starting masculinising hormone therapy: “It’s going to be amazing”.

Age at interview 22

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Books, reports and journals

Some people we spoke to had looked at books, reports, academic and medical journals. Noelle said that she “only trusted official medical documents”. She continued, “I trusted that more than I trusted testimonials from other trans people”. The reason she gave was “because there’s a lot of conflicting information so I just went with what’s scientifically proven on paper”. She said, “I found out the correct dosages for hormones, I found out the known side effects, what hormone ranges I should be aiming for” in medical journals. She said that information in journals is “quite matter of fact”.

Kat gave example of reports by the American Association of Paediatricians (AAP) and the Endocrine Society and World Health Organisation (WHO). She said these had “lots of information.” She also shared that she used these reports for challenging misinformation and “opinions that are wrong and have been disproved”. The young people we spoke to also picked out gaps in the information for some groups such as non-binary people and trans people of colour.

Kat talks about her opinions on misinformation about young people and gender dysphoria.

Age at interview 15

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Jay talks about his useful sources of information for trans healthcare in medical journals.

Age at interview 23

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‘A’ talks about having to “put together bits of information” for non-binary people and understanding “not everything was going to apply”.

Age at interview 21

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Max says that the “basic information” they found was “very white” and he couldn’t relate to that at all.

Age at interview 25

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See also:

Journeys to identifying as trans and gender-diverse

Race, culture, religion and healthcare

College and university

Some of the young people and adults we spoke to talked about important experiences they had at college or university. Although young people had mixed...

GP knowledge, process and referrals

Young people we interviewed had mixed experiences with their general practitioner (GP) and their GP surgery. People talked about their GP’s knowledge of trans healthcare and...