Future plans and recovery for young people experiencing psychosis

Future plans

While a few people we spoke to had no particular plans for the future, most had ideas about what they would like to do next. Some were looking to move to a new area to support their recovery or find work. Others were studying or had plans to study or do an apprenticeship.

Joe wants to do a Masters degree in theatre and says the only thing holding him back is the cost of funding the course. Although his experiences of psychosis will always be there he isn’st going to let it deter him.

Age at interview 23

Gender Male

Age at diagnosis 21

View profile

A few people, who were working before their first experience of psychosis, returned once they felt well enough. But some didn’t feel they could go back to work, or didn’t want to, and decided on a career change. Luke had been working in a global professional services company but wasn’t sure whether people like him with experience of bipolar disorder and schizophrenia could work in that environment. He had always been interested in philosophy and so applied to study philosophy and religion at university.

Joseph could have returned to his work as a chef but is glad that he didn’st. He took time to re-evaluate what he wanted and has taken on some gardening work for a while, which is quite therapeutic.

Age at interview 22

Gender Male

Age at diagnosis 21

View profile

Some people we spoke to found it hard to think about the future positively. Even when people were managing their psychotic experiences better, it could be hard to recognise this. Dominic said in the early stages of experiencing psychosis it can be hard to recognise your achievements. His voices criticised him constantly and he said ‘they had so much power over me at the time that it was just impossible to feel good about these things’.

Also, thinking about the future often meant people had to come to terms with a life altering experience. Experiencing psychosis affected many things like relationships, friendships, working life, finances, studies and career prospects, and especially self-esteem and motivation.

Although Lucy thinks it is possible to get on with life with psychosis, she worries about people noticing her self-harm scars and feels less motivated to do things

Age at interview 22

Gender Female

Age at diagnosis 21

View profile

Recovery in the context of psychosis

Recovery from psychosis can mean different things to different people, and not everyone likes the term recovery, for example, people who feel it’s not possible to recover. For those who use the term, recovery can be about one particular experience of psychosis coming to an end. Or it can mean having fewer recurrences of psychosis. But for those who experience psychosis on a day to day basis, it can mean that psychosis has a less severe impact on daily life and on their sense of wellbeing. For example, Andrew X said: ‘What recovery is to me is living with my condition as content as I possibly can and doing things I enjoy. Recovery is a journey. It’s not a destination for me, it’s a lifelong journey that I’m always gonna be on.’

Recovery for Dominic can mean many different things and can be something simple like leaving the house. He says it’s very important to recognise and celebrate those achievements.

Age at interview 24

Gender Male

Age at diagnosis 21

View profile

Ultimately, what recovery means varies from one person to the next and can mean recovering from a single experience of psychosis, or if psychotic experiences are ongoing, having experiences that are less severe, or less frequent. The people we spoke to often thought of recovery as meaning that they were able to live with the psychosis and its aftermath and still be positive about the future. Others felt the word ‘recovery’ should mean no longer having usual thoughts or experiences and didn’t think this would ever happen.

Recovery from the experience of psychosis through treatment in hospital happens pretty quickly for Luke, although the post-psychotic depression lasts longer. His game plan is to reduce the regularity of the psychotic experiences.

Age at interview 21

Gender Male

Age at diagnosis 19

View profile

Although Ruby doesn’st think her emotions will ever be standard, she thinks her response to them will change. She has accepted that although her psychosis may or may not go away, her life is worth living.

Age at interview 22

Gender Female

Age at diagnosis 19

View profile

Peter has not sought help or counselling about his intrusive thoughts and can’st imagine not having them in the future.

Age at interview 24

Gender Male

View profile

Lucy didn’st think that distress tolerance’s sounded like a good idea. She wanted to feel better, not to settle for this being okay.

Age at interview 22

Gender Female

Age at diagnosis 21

View profile

Different ways to recover

People who had experiences of psychosis over a number of years, and had found self-help tools that worked for them, often talked about their recovery as something they themselves were actively managing. Taking medication could assist with this – although for some medication was seen as unhelpful or as making things worse.

Recovery wasn’t about going back to how things were before psychosis but about accepting what was happening. For some being able to reflect on what had happened helped them to see their experiences as having good and bad consequences. With time some felt more in control of how experiencing psychosis affected them day to day. Becky says that now the way her mental health affects her is not always negative, whereas before she would have said it was completely negative: ‘It may put me on hold sometimes, but it doesn’t have to take over’. As people got older they were sometimes able to understand their psychosis differently. Luke explains that for him:

‘The thing is with psychosis, you learn more about yourself every day. And I suppose that’s actually one of the great things about it. You’re young, you have that trepidation and the fear about what it is. But actually, you begin to understand more about your identity as you get older.’

Andrew X’s experiences of psychosis destroyed him, but also made him the person he is today. If there was a magic pill that meant all his experience of mental illness would disappear, he says he wouldn’st take it.

Age at interview 24

Gender Male

Age at diagnosis 14

View profile

For Joseph, recovery is not about returning to how you were before the experience of psychosis, but about focusing on whatever comes out of those experiences.

Age at interview 22

Gender Male

Age at diagnosis 21

View profile

Many of the young people who spoke to us, said sharing experiences with others is an important part of finding out who they were, and of recovering. A few people said it was important for them to speak openly about their experiences. Overcoming negative feelings about their own mental health (such as shame or confusion) and learning from their own (and others’) experiences helped some people feel more positive about themselves and their future. Dominic said, ‘The reason why I’m such an honest person about it is because it made me who I am now.’ Nikki felt that talking about it with people, made her think more positively about the future, and helped her see ‘that you can live with it’.

Many wanted to help others by sharing their experiences and what they had learned from them. A few had started working as peer supporters and saw this as a way to turn what had felt like a negative experience, into something more positive.

Posting a YouTube video where she talked about her experience of psychosis helped Sameeha’s recovery.

Age at interview 22

Gender Female

Age at diagnosis 21

View profile

Things have started to improve for Nikki since she was accepted to study mental health nursing. She became involved with lots of extra curricular activities at college, which gave her a purpose.

Age at interview 19

Gender Female

View profile

When people have learned a lot from their mental health experiences and feel a sense of recovery they might want to help others. Joseph wants to share his experiences to provide hope for others about the future.

Age at interview 22

Gender Male

Age at diagnosis 21

View profile

Managing wellbeing with psychosis

Here we talk about things people discovered for themselves that helped them to feel good, and stay well as much as possible after first experiencing...