Manhood, mental well-being and self-confidence

As people come to terms with their diagnosis, think about what it might mean for their family, or adjust to the changes in their life following treatment for penile cancer, they are likely to experience a mix of feelings and emotions (see ‘Feelings and emotions‘). Losing part, or all, of the penis through surgery left some of the men we interviewed feeling like they were ‘less of a man’. Others, while recognising that losing this part of their body has been difficult, say that there is much more to being a man than their penis. Some of the men we interviewed, that had a wife or partner, said that their support (see ‘Support of others‘) helped to make them feel more secure about their identity as a ‘man’.

Now that he felt that most of his manhood has been taken away, Paul said he wouldnt have the…

Age at interview 61

Gender Male

Age at diagnosis 59

View profile

Mark feels ’emasculated” he struggles to wear jeans or shorts because he is worried that people…

Age at interview 48

Gender Male

Age at diagnosis 46

View profile

Whilst Tim feels that his sense of masculinity has been affected, his wife is quite happy and he…

Age at interview 54

Gender Male

Age at diagnosis 53

View profile

The support of Jordans wife has been vital in helping him overcome his initial feeling that he…

Age at interview 58

Gender Male

Age at diagnosis 57

View profile

David thinks that his experience has had a marginal effect on his sense of masculinity but says…

Age at interview 70

Gender Male

View profile

At times, the mental and emotional impact of having cancer can feel as great as, or even greater, than the physical effects. Some of the people we interviewed found that there were times when they felt depressed, or their mood swung between highs and lows. Long after the physical wounds of surgery had healed, some men found that the psychological impact of their cancer continued because they continued to be troubled by thoughts about how their lives had changed.

Mark says the psychological part of having penile cancer was the overriding problem for him.

Age at interview 48

Gender Male

Age at diagnosis 46

View profile

John Z occasionally gets depressed, but it is not common knowledge.

Age at interview 68

Gender Male

Age at diagnosis 64

View profile

After treatment, the men thought about their cancer less and less. Some of the men said that they didn’t think about their cancer often and they felt as if they were as strong emotionally as they were before they found out they had penile cancer. Nevertheless, thoughts about the cancer did sometimes return making them question why they got it and what will happen to them in the future.

Mick says its something he doesnt think about: hes got the disease and thats it.

Age at interview 69

Gender Male

Age at diagnosis 67

View profile

While things sometimes go through interviewee 21s mind, the cancer hasnt affected his…

Age at interview 74

Gender Male

Age at diagnosis 73

View profile

To help them cope with the emotional impact of their diagnosis and treatment, several of the men we interviewed tried to maintain a positive attitude, often using humour to ease the burden. This often meant laughing with others or learning to accept their help (see ‘The support of others’).

Colin thinks humour is a healer: being open and honest is the best policy in life.

Age at interview 62

Gender Male

Age at diagnosis 62

View profile

Frostys cup was always half full and when on the ward he had a laugh with other patients.

Age at interview 68

Gender Male

Age at diagnosis 65

View profile

Tim found that nobody had ever heard of penile cancer. When he talks about it he finds that…

Age at interview 54

Gender Male

Age at diagnosis 53

View profile

To maintain his self-esteem, John had to learn to let people help him.

Age at interview 75

Gender Male

Age at diagnosis 74

View profile

A number of men talked about the importance of having a strong support network in helping them to cope with the mental and emotional impact of their experience, be it from friends, family or a strong faith (see ‘The support of others‘). Several said that sharing their concerns and being open about it had helped them to maintain their self-confidence and their self-esteem.

Steve wasnt looking forward to the rest of his life on his own: he would have been devastated if…

Age at interview 71

Gender Male

Age at diagnosis 65

View profile

Sharing the problem with family and friends, there has been no impact on Jims confidence or self…

Age at interview 60

Gender Male

Age at diagnosis 58

View profile

John smiles because he feels he’s got a lot for which he feels he should be grateful. For a short…

Age at interview 75

Gender Male

Age at diagnosis 74

View profile

Counselling and psychological services were rarely considered or offered as ways of supporting these men to manage with the emotional impact of their diagnosis and treatment. Of the men we interviewed, some said that they wouldn’t have used such services even if there were offered, although Mark found that counselling helped.

Mick says he would not have accepted an offer of counselling: he was relieved that his cancer…

Age at interview 69

Gender Male

Age at diagnosis 67

View profile

Mark wouldnt be in the position he is now without the help of a local counsellor, although the…

Age at interview 48

Gender Male

Age at diagnosis 46

View profile

Feelings and emotions

Having arrived at the point of treatment, men will probably have already experienced a mix of feelings and emotions (see 'Hearing the diagnosis'). This mix...