Have there been any other financial implications of your diagnosis?

I told you- the cost of taxis. And that is scary because some people who were have… having treatment and I thought gosh if they have to come down to [city] every time I don’t know how they do it unless they’re on private, you know. And it really was very expensive until I had the support taxi and then the support taxi took over from they couldn’t provide transport at a minute’s notice so I did use the an ordinary taxi on one other occasion. But yeah the cost of taxis. In terms of my daily life I’m not working. I’m retired andnoit hasn’t affected my me. it’s affected me financially. I’m used to quite a bit of money. But the moneyis there, you know. And when it’s gone [laughs]. Well when it gone when it’s gone I’ve got my house, you know, and so I really am not concerned about the financial side. I can understand being desperately concerned about it, yeah.

I love my singing. The thing that’s affected my singing is I don’t I can’t stand as muchon my on my feet. I tire very easily when I’m standing on my feet. And I think that’s because these operations were in my groin. I was also told that that it may affect my left leg where the lymph nodes were re removed. It hasn’t affected my left leg but I think maybe it has… but not in a particularly negative way. I mean I can walk and so forth. Presently I’ve got sciatica but that’s [chuckles]ut I can walk and go out and stuff like that so I think it’s just in terms of my kind ofability to coordinate and organise my thoughts. That’s I think it has affected that. But that might be age as well, you know.

What did you struggle with most in regard to the catheter?

Embarrassment. I couldn’t hide what I what you knowBecause they said you know they said to me well of course itthere are so many different types of catheters and you can have a bag which is unobtrusive and so forth and no one will know. You know but I think… I would know and I knew and even when I was carrying them I mean they were they were… I went down to London with one tied onto my leg. You know, so people in theory didn’t know but didn’t matter- I knew. Sojust the embarrassment of sort of having that.

So more that than the physical discomfort?

Oh there wasn’t any physical discomfort. I mean I just got used to sort of emptying the bag. It was just the physical discomfort was there initially because of the soreness of the well not the soreness but the treatment of the penis, you know. But I tell you I had a laugh with the nurses. I mean we had we had fun trying to sort that one out for a long time.

Oh yes. It can be cured. And that’s notI mean I you remember I told you I was the level 3 cancer that I had which was the most sort of virulent and I’ve been cured from it soYeah it will it could be uncomfortable but life you can get on with life but if it’s a young person I think that’s a different animal all together, you know. And I’m an older generation butfor someone younger…it must be devastating on the sexual side. I mean I don’t think there’s any of that answer for it, you know and… They’ll have to face up to problems which I haven’t faced up to. And as a completenew way of looking at life. But the main thing is that that life can be just rich afterwards. And that these specialists know what they’re doing, yeh. They do. They know what they’re doing.

I’m reluctant to talk and I feel rightly reluctant to talk about it. it’s not something that that… I talk to youbecause of this is why I hesitated for so long because talking about it. I don’t want to talk about it. I’ve moved on, you know. And looking for the next stage rather than stages that have beenbecauseI think this is the gift God’s given us that in fact you know once it’s happened youyou might have made a mistake – I made a mistake. I should have told my family earlier. They’d have known earlier. It wouldn’tit might have madeit would have made some difference. There’d have been some changes but it’s happened. So therefore I move on. So only people in a sense who are in a supporting mechanism are the ones that know, you know. And that’s the way I want it to be, yeh.

Oh I had no problem once I’d told… I just went back I went round to my son and I said look’ and that was it. I said you know I’ve got something to tell you. I couldn’t hide it any longer you know I mean you know and that was it. So with my son and my daughter-in-law and I told them. And my niece… my granddaughter rather who is sort of 17. And I knew my granddaughter was in tears you know and that’s the very thing I didn’t want to happen. But it did happen so you know I had a I had a chat with my granddaughter on her own andafterwards you know we talked to her you know. And so that was it. But it was a generalisation with her that I had cancer. You knowmy son and daughter-in-law they were given the details and of course my son went down to [Name of place] with me. So he was there when I saw the specialist and he had his notebook, making notes of everything that happened. He’s done that as often as he could because of this wandering mind of mine [Laughs].

Well I find that I’ve got to laugh at myself when I forget things now, yeah. I’ve got to laugh at myself when I stumble, you know because I do that but yeah. But in terms of my self-esteem the main thing is and I again this is important, I’ve had to learn that if someone is concerned about you and asks you, I told you I find it very difficult to talk. Now if someone offers something I don’t. If someone is if someone is wanting to do something and be helpful then I say yes alright. Even if I can do it myself sometimes occasionally I’ll let them do it. I mean on holiday people were picking my case up you know. I could have done it but no someone else did it for me. You know no you’re not going to do that John. You know well I mean I can pick up a chair and move a chair around. I mean I’ve done some furniture moving and stuff like But that wasn’t the point. They wanted to do it so I said, Oh thank you very much. I didn’t… you know. So from that point of view accepting help from others is very, very important when they offer. Even if you don’t… even if I don’t need it, you know.

And… you know people say well you’re smiling John’ you know and I smile and I always smile. I said, But I’ve got a lot to be grateful for’ I said I’m here. I’m able to do things. The things that might have happened haven’t happened. There might be other things happen but at they’ll if they come they’ll come. I not going to sit and think well it might that. But it’s when I wake up in the mornings, this is important in the conversation, when I wake up in the morning for about quarter or an hour, twenty minutes I’m scared, you know. And I mean that seriously. I’m scared, you know and and thenI pray. That’s where the faith comes in. I pray and I get up and I think right I’m here, let’s get on with the day. You know and there’s nothing to be scared about because I’m not I’m you know if something happens God’s been with me so far. He’s going to be with the rest of the way.

How did you feel when you saw the results of that?

Do you know in a… I could only say one word’ relieved. Because what I’d been hiding for months was now out. And it wasn’t as bad as what I’d be what I thought it would be, you know. And that’s what’s happened all the way through, you know. Relieved. I you knowit was something I was.. I don’t like hiding things and it was something I was hiding and it was affecting me and it it’s gone. I mean it’s there now and I live with it and people know what I’m living with.

So the results were as you expected them to be?

Well as I as I was told they would be, yes, yeah. they’re better than I expected, better than expected. I mean I don’t have a bag. And that that’sI don’t know I mean if this is being used for anyone else… I just feel so much for people who have to wear catheters of any form.

That was justI just wonder I meanoh I don’t think it’ll happen again. I mean I don’t think I’m going to have operations like that again. I don’t think I would let them but to have that is just unbelievably sort ofwell just you know and I went through the thoughts of that and when that was removed I, you know, I went in to see the nursing err the nurse and she checked everything and she said, Well it’s alright. It should be alright’ and she removed this. And I have never felt sosort of relieved in my life, you know. So tell people that, you know. it’s hell. I mean it’sit’s an awful feeling.

At this point I think I’ve got to mention that we have a district nursing service here and it is it can be second to none. The district nurses were absolutely wonderful. They came in every day. They helped me. They helped me. They dressed me because the problems were dressing the… dressing the wound. They came and they supported me. They chatted to me. They smiled to me. And it was absolutely wonderful. So physically they were there with me for the whole of my period of going through this and for all of my treatment. Dressing woundsI didn’t have to go surgery. They came out to my house.

My Christian faith which is very strong. I’m a lay preacher. And somehow like this morning I’ve just been to our prayer meeting. Then… the… they were there to support me all along and have been all along in a kind of cushion that knowing that somehow, whatever happened, God would be there for me when I went through it. And the promise has been kept. I’ve felt that assurance. So I won’t refer to that assurance again because it was there all the time, this assurance. Peop… friends were ringing me up, coming to see me, friends, I had over 50 cards twice in the process. So that is inherent in all of this and I still don’t know and I’ve talked to people about that and I still don’t know how people without faith can go through something like this. That they’ve got no… nothing outside of themselves to support them. Because I was supported from inside and from outside. Oh yes the services were wonderful. I mean, the, but… But you were left on your own. Well I never felt as though I was alone. Someone would call up. Someone would come and we’d have a chat, you know. And one friend has been with me all ev… he’s been going down to the hospital with me every time. Almost every time because my son had had to work and it’s difficult for him to get out. My daughter-in-law had time. She came down occasionally, being wonderful. My lady friend she’s just been there and just given me the support when needed. But it’s this feeling that that I’ve got support.

I mean it’s my family as farwe’re we’re a close unit so I think the concern is there, the love is there and the, but it was always there you know. When my daughter-in-law would ring me up and say are you alright John?’ you know because I’m on my own so and I came to live here after my wife died so I’ve been on my own so yeah I think friends and family just ring me up anyway. So yeah the friendship is stronger. Around that periphery, around that in the periphery a lot of people who I found were acquaintances I realised it’s much more than an acquaintance. The friendship is much deeper than that. I told you about the cards, you know, and the phone calls and the emails and so forth. I realised that in fact this is concern at a deeper level so family aside, close but it’s just continuing. But I’ve realised that there’s I’m so blessed I’ve got so many really wonderful friends and neighbours who are prepared to help. And the couple next door they’ve left now. And I was doing something in the garden and you don’t talk to your neighbours very much, you know, and he came out and he said, I’ll do that for you if you want’, you know. And yet we had we you know we talked but never very much. So I think it brings out things in people that were there. We’re a very inherently sort of conservative soc… group of people, we British. And I think this has made me realise that in fact yeah, you know, these people are concerned and they want to know how you are, you know.

Then they said, Well since the lymph nodes have gone now we’ve now got to check whether they’ve spread to your main system. Now that was something that hadn’t been mentioned initially. But they then said, If it’s at the main system then we have all kinds of possible problems because once it’s got there, it can go anywhere in your body. So, you know, then I just accept that. I thought if it’s going to happen it… it will happen. Again my faith sort of said, Well I’ll be looked after. Andit was done at… well they had a special I think they used micro-surgery and they removed samples and there was no evidence in my in my system whatsoever. So therefore as far as they were concerned it was clear. But then I had to be referred to the another specialist who looked after radiotherapy. Because paralleling this they found that my PSA [chuckles] was higher thanso they suspected that I had prostate cancer. That suspicion has been verified with another [chuckles] another biopsy. But you know I smile but these all went on very quickly the whole thing was done.

So what were your immediate thoughts when you when you first heard cancer’?

Oh I thought I was going into a black hole. You know I thought.no that’s it. Nothing more, nothing less. You know that’s it. God I’m in your hands now. You know and that was it. I didn’t know. So why should I sort of get myself in a state. My wife had died, my son had died, Ithen that’s going to be me, you know, at some stage. And then this oh.then this the first specialist said no, no, no, no it may notit probably won’t be that’ you know soWell I’m not afraid of dying you see. This is the thing. I mean if it happens when you’ve watched a 7 year old boy die with Leukaemia believe me you’re not afraid of dying. You know if he could do it the way he did then I could do it. And then my wife and thenyeah. That’s part of life, you know.

It really is complicated all the possibilities that well which one is it so you know I I didn’t. I relied on what they told me and what the book’s now I’m you know I’m a university graduate, I’m a former teacher. It seems strange but in fact I only wanted the information that I needed. I didn’t want any more and a friend would say well don’t worry about things like that John. Let just listen to what you’ve been told. Don’t think about what if’, what if. Get away from the what if’ situation and that’s what I’m trying to do. And that’s why I’m in the middle of this waking up in the morning and feeling what if’ you know. And it’s crazy you know. Because.what if’ doesn’t shouldn’t exist because I know that I’m going to be looked after. And there’s somebody there who will know what to do and if it might be different for someone who’s not had the kind of treatment that I’ve had. My treatment’s been superb, yeh.

I didn’t want my friends to have to… go through the kind of thing that I’d gone under with my wife and my son. I wanted to put it off. There was a little bit of me sort of all the time thinking well it won’t happen, it won’t happen. It was as simple as that, I, you know. And that’s why peop.. my friends have said and my son and daughter and that that’s crazy John. But it wasn’t. To me it made… at the time it made sense, you know. Now I share it all with everything with them. You know and… the little things and the big things. Because there’s no little things. And also, if there’s anything I go to the doctor. I mean this is the first time but it’s happened but I went to the doctor. You know whereas I hadn’t really visited my own doctor apart from regular checks because I have I have blood pressure tablets which have gone on and I’ve got to see him. Apart from that I’ve not really consulted with my doctor since this all started. So that’s the answer there. And it’s a very important one. You knowit wasn’t it wasn’t a case of… it wasn’t fear. It wasn’t fear. It was it was disclosure to others and the effect it would have on others, you know.

How did you feel about people observing your penis like that?

[Laughs] Oh I had I had quite a joke with the nurses and the staff. I you know to this day it… with nursing staff it doesn’t embarrass me at all, you know. But with obviously nobody else sees it but with nursing staff I mean you know that’s it, you know o I was not embarrassed at all, you know. I have to strip down and that’s it, you know. And it was sometimes a lady medical assistant doing it. It was sometimes… well it was mainly they were the one that did the treatment of course. The district nurses we just had a great… honestly we had a great laugh because I had a dressing which had to be removed and it was it was wrapped round something which itself was very mobile and we had to work out how to you know… and we’d have a good laugh about it, you know sono I was not embarrassed. I can’t explain why but I was not. I mean they were part of my process of So there wasn’t any embarrassment. it’s all to do with how people react to you in the way in the way that you’re being treated I think.