The effect of osteoporosis on work and finances

Whilst many of the people we talked to had been retired for many years, some were still working full or part-time. Here people discuss the effect of osteoporosis on work and finances. Some people said that they found it difficult to work full-time because of their osteoporosis and had either retired, were thinking of doing so or had decided to work part-time.
Several people had to give up work after diagnosis and/or because their condition had got worse. Pat and Rose were on sick leave for a long time following their spinal fractures and when Rose returned part-time to her work, she did a different job with less responsibility to the one she had left. Pat was asked by her employer to take early retirement because as a nurse she could no longer do her job. Retiring because of illness at a relatively early age can be hard, particularly for men.

Stopping work was difficult for Robert because it wasnt just about earning money but also about…

Age at interview 49

Gender Male

Age at diagnosis 43

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Although several people said that osteoporosis was having a detrimental effect on their working life, work also kept them active and gave them a sense of achievement. Laurence does manual work and in the last few months he has started to get more pain than before after doing some heavy work. Although he enjoys his work, he is thinking of working part-time or retiring in a few years time.

Emma has reduced the number of hours she does every day but still continues to work five days a week because she wants to keep active. Originally she planned to keep working until the age of sixty-three but now it will very much depend on her health. Jane took a longer journey to work to avoid using public transport that also ensured her a parking place so she could reduce the need to carry things for long periods of time.

Laurence wants to keep working full time on the farm for as long as possible because of the…

Age at interview 62

Gender Male

Age at diagnosis 54

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A few people had decided to work part time or were thinking about early retirement because they wanted the time to do things they enjoyed while they were still fit and able, in case their osteoporosis deteriorated and affected what they could do in the future.
Having more time in the week had enabled some people to manage their osteoporosis better, by having the time to do exercise.

Apart from a few friends at work, Marylin hasn’t told her employers that she has osteoporosis.

Age at interview 59

Gender Female

Age at diagnosis 56

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Several people worked for their local councils and made the point that the public sector, like local government organisations and the NHS, were good employers. David, who has also had rheumatoid arthritis since he was a child, said that his employer, the city council, had been ‘fantastic’ in providing anything he needed to do his work. He is helped through a special initiative called ‘Access to Work’. Access to Work provides advice and practical support to disabled people and its employers to help with work related problems resulting from a disability.
Jenny who worked for Social Services for twenty years, said there was never any money for new equipment so she did not ask for any special equipment herself. Emma started having headaches that her doctor thought were work-related.

The council where Emma works provided her with a special desk, chair and other equipment but she…

Age at interview 61

Gender Female

Age at diagnosis 47

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Gloria worked for the voluntary sector. She said that although Health and Safety is a big issue now people still did not realise how serious and fatal osteoporosis can be.

Gloria thinks that most employers arent aware of how serious osteoporosis can be and do very…

Age at interview 66

Gender Female

Age at diagnosis 58

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A few people did not see the need to tell their employers that they had osteoporosis because they did not require any special equipment and their ability to do their job was not affected by their condition. Marylin who does a desk job was able to take regular breaks and went up and down the stairs several times during her working day. But other women, like Sarah and Jenny, found it difficult to stop what they were doing and take a rest every twenty minutes. Side effects of medication can also make people feel irritable or tired which can affect working life.

Keiths medication makes him irritable. He tries very hard not to be irritable at work.

Age at interview 55

Gender Male

Age at diagnosis 54

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Several people were working as volunteers for various organisations and said that voluntary work gave them a structure to their day, a chance to use their skills, social contacts and social status (see also Osteoporosis organisations and local support groups).

Joan now does voluntary work at her local hospice where she has made some very good friends.

Age at interview 73

Gender Female

Age at diagnosis 69

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Chris has just completed her Master degree in Art and wasn’t been able to start work because she was due to have more surgery on her ankle.

Financial impact

Osteoporosis can have several cost implications. Several people purchased equipment for around the house, such as stair lifts, electric operated garage doors, extra handrails, special adapted kitchen utensils or built a walk-in-shower. Other people had to replace things they already had like an armchair, bed, mattress and sofa. A few bought an adapted, more comfortable car, or had to pay for taxis. Some people saw a private consultant and/or physiotherapist, joined a health club or regularly paid for complementary treatments and/or bought vitamin supplements.
Being elderly, living alone and having restricted mobility could also add to the cost as people paid for cleaning, gardening, having groceries delivered and in some cases buying special clothes. David paid for his wheelchair and although he is aware he can get funding for it he said it is quicker to get it himself. Susannah said that she has paid a lot of money for supplements and equipment to help with her osteoporosis (see for example Impact on home due to osteoporosis and Use of complementary therapies by people with osteoporosis).
Osteoporosis had affected some people financially. Those who retired early said that they had to be ‘careful’ with their incomes and savings. For instance, Susan couldn’t afford to see a private consultant because she has a small pension. Laurence, who is still working, was aware that early retirement will affect his monthly income because at present he has a pension and a salary. Chris thought that both her fracture and her divorce had an impact on her finances. Emma’s son and daughter live with her and help with the household expenses.

Chriss ankle injury and operation has stopped her from working for a short while.

Age at interview 52

Gender Female

Age at diagnosis 45

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Benefits
A few people said that they were in receipt of government benefits, which was given for other conditions and not osteoporosis. For a person to qualify for such benefits a form must be completed and a doctor usually has to examine the person to assess whether he/she can perform certain tasks.

Jane was assessed for Disability Living Allowance and she was surprised she did not get it.

Age at interview 42

Gender Female

Age at diagnosis 36

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Some people have had their needs for services and equipment assessed by Social Services and a written report was made about their personal needs.

 

 

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