Profiles

Here, you can find any of the interviews on this site.



Interview 01

Diagnosed with prostate cancer in 1999, prostatectomy in 1999.

  • Background

    Diagnosed with prostate cancer in 1999, prostatectomy in 1999.

  • Age at interview 55
  • Sex/Gender Male

    • Interview CH10

    Their son was diagnosed with Transposition of the Great Arteries, ASD, VSD, Atrial Isomerism and Pulmonary Stenosis. He has Dextro cardia and Bronchial Isomerism. Treatment: none given yet, surgery planned for when their son is older. Current medication: ventolin & flixotide for asthma.

  • Background

    Baby’s Age at interview: 21 months. Diagnosed during pregnancy (20 weeks). Marital status: married. Occupation: Mother-Health & Social Care Consultant, Father-IT Consultant. Parents have one older child. Family live within...

  • Sex/Gender Male

    • Interview CH09

    Their son was diagnosed with Coarctation of the Aorta, PDA, Bicuspid Aortic Valve, Hypoplastic Aortic Arch, VSD, Mitral Stenosis and Pulmonary Hypertension. Treatment: Surgery at 3 weeks old, mitral valve replacement at 2.5 years. 2 cardiac catheterisations at 2 yrs and at 3 yrs. Further mitral valve replacement planned. Current medication: warfarin.

  • Background

    Diagnosed at 3 weeks old. Parents marital status: married. Occupation: Mother-Part time Secretary, Father-Bank Manager. Other children: one older child. The family do not live close by to a specialist...

  • Age at interview 4
  • Sex/Gender Male

    • Interview CH08

    Daniel was diagnosed with Tricuspid Atresia, Hypoplastic Right Ventricle, VSD and Transposition of the Great Arteries. Treatment: cardiac catheter at 24 hrs old, banding operation at 2 weeks old, followed by 1st stage Fontan at 10 months old. Further catheters and surgery planned. Current medication: warfarin.

  • Background

    Diagnosed during pregnancy (20 weeks). Parents marital status: married. Occupation: Mother-Full time Mum, Father-Retail Manager. Other children: one younger child. The family live close by to a specialist hospital.

  • Age at interview 3
  • Sex/Gender Male

    • Interview CH07

    Felix was diagnosed with Hypoplastic Left Ventricle, VSD, Mitral Atresia, Pulmonary Atresia, Right Atrial Isomerism, aorta arising from the right ventricle, TAPVD and Bilateral Superior Vena Cava and no spleen. Treatment: modified BT shunt (6 days old) open heart surgery (3 months and 6 months), 1st stage Fontan (10 months). Further surgery planned. Current medication: warfarin, enanapril, frusemide, penicillin.

  • Background

    Diagnosed during pregnancy (32 weeks). Parents marital status: married. Occupation: Mother-Civil Servant, Father-Police Officer. Other children: two older children and a younger sister. The family live close by to a...

  • Age at interview 3
  • Sex/Gender Male

    • Interview CH06

    Their daughter was diagnosed with Hypoplastic Right Heart Syndrome, Tricuspid Valve, Coarctation of the Aorta, Transposition of the Great Arteries. Treatment: A banding operation at 22 hrs old, repeated at 1 week old. A cardiac catheter at 10 months and a CP shunt at 1 yr. Further palliative operations planned. Current medication: Phenoxybenzamine Hydrochloride.

  • Background

    Baby’s ago at interview: 15 months. Diagnosed during pregnancy (20 weeks). Parents marital status: married. Occupation: Mother-Full time Mum, Father-Postman. Other children: one older child. The family live close by...

  • Sex/Gender Male

    • Interview CH05

    Joe was diagnosed with Di-George Syndrome and Tetralogy of Fallots. Treatment: one operation at 3 weeks old, 10 months and at 18 months old. Current medication: none.

  • Background

    Diagnosed at 6 hours old. Parents marital status: Separated. Occupation: Mother-Student. Other children: one older child. Family live close by to a specialist hospital.

  • Age at interview 2
  • Sex/Gender Male

    • Interview CH04

    Their daughter was diagnosed with Truncus Arteriosus. Treatment: Surgery at 5 weeks old to fit a conduit and repair the hole. Cardiac catheterisation planned for pre-school. Current medication: captopril.

  • Background

    Diagnosed at 5 weeks old. Parents marital status: married. Occupation: Mother-Teacher, Father-Architect. Other children: one younger child (no heart problems). The family do not live very close to a specialist...

  • Age at interview 3
  • Sex/Gender Male

    • Interview CH03

    Their son was diagnosed with Tricuspid Atresia, a large VSD, ASD, small right ventricle and small pulmonary artery. Treatment: Modified BT Shunt and Atrial Septostomy at 24 hrs old. Cardiac catheters planned. Further operations planned when their child is older. Current medication: diuretics, aspirin, sytron, anti-reflux and lactulose.

  • Background

    Baby’s Age at interview: 3 months old. Diagnosed during pregnancy (21 weeks). Parents marital status: married. Occupation: Mother-Market Research Adviser, Father-Accountant. No other children. The family live close to a...

  • Sex/Gender Male

    • Interview CH02

    Thomas was diagnosed with Tricuspid Atresia, Transposition of the Great Arteries and Coarctation of the Aorta. Treatment: An arterial switch operation at 36 hrs old followed by a BT shunt at 5 months, a Kawashima at 33 months and a Fontan at age 7. Current medication: wafarin.

  • Background

    Diagnosed during pregnancy (18 weeks). Parents marital status: Separated. Occupation: Mother-Full time Mum. No other children. The family do not live close to a specialist hospital.

  • Age at interview 7
  • Sex/Gender Male