Here, you can find any of the interviews on this site.
Their daughter was diagnosed with Total Anomalous Pulmonary Venous Circulation. She had open heart surgery at 5 months old. Current medication: none.
Diagnosed at 4 months. Parents marital status: married. Occupation: Mother-Social Worker, Father-Civil Servant. Other children: one older child. The family do not live close to a specialist hospital.
Their son was diagnosed with Bradycardia during pregnancy. A VSD, PDA and a double aortic arch were diagnosed when he was 3 weeks old. Treatment: surgery at 8 weeks old to correct double aortic arch and to close pulmonary duct artery. Increasing drop in heartbeat (Bradycardia) led to emergency pacemaker fitted at 6yrs old. Current medication: none.
Diagnosed during pregnancy (17 weeks). Parents marital status: married. Occupation: Mother-Full time Mum, Father-Barrister. Other children: no other children. The family live close by to a specialist hospital.
Andre was diagnosed with Hypertrophic Cardiomyopathy at 3 months old. Treatment: he takes Verapamil and has to limit his physical activities. He has annual check ups. Her 6 month old daughter has a VSD, diagnosed when she was 3 months old. It is expected that the hole will close on it's own, without the need for treatment.
Diagnosed at 3 months. Parents marital status: married. Occupation: M-Cardiomyopathy Association, F- Sales & Marketing Manager. Other children: 6 mths old and 3 yrs old. The family do not live...
Luke (1996-2002) was diagnosed with coarctation of the aorta, transposition of the great arteries, VSD, pulmonary stenosis and double inlet left ventricle. He died when he was nearly 6 yrs old after his fourth operation (not including cardiac catheters).
Senior Housing Support Officer, single parent for 4 years. Luke’s natural father left before he was born ceasing all contact by 36mths. Met current husband in 2000, he had a...
Thomas was diagnosed with Tricuspid Atresia, Transposition of the Great Arteries and Coarctation of the Aorta. Treatment: An arterial switch operation at 36 hrs old followed by a BT shunt at 5 months, a Kawashima at 33 months and a Fontan at age 7. Current medication: wafarin.
Diagnosed during pregnancy (18 weeks). Parents marital status: Separated. Occupation: Mother-Full time Mum. No other children. The family do not live close to a specialist hospital.
