Here, you can find any of the interviews on this site.
Noah (2000-2001) was diagnosed with critical aortic stenosis at 12 hours old. He died aged 4 and a half months old following three operations to try to repair his heart. Noah spent 4 and a half months in intensive care.
Parents marital status: cohabiting. Occupation: Mother-Researcher, Father-Internet programmer. Other children: one child aged 5 weeks old. The family do not live close to a specialist hospital.
Vikram was diagnosed with a large ventricular septal defect (VSD) at 3 months old. He had corrective open heart surgery to close the VSD at four and a half months old. He is recovering well and no further treatment is expected. Current medication: none.
Baby’s Age at interview: 9 months. Diagnosed at 3 months old. Parents marital status: married. Occupation: Mother-Full time mum, Father-Information Technology. Other children: one older child. The family do not...
Their son was diagnosed with Hypoplastic Left Heart Syndrome. Treatment: Japanese Stage 1 Norwood at 4 days old and Stage 2 Norwood at 4 months old. Stage 3 is planned for pre-school. Heart Scan at local hospital every 3 months. Current medication: aspirin, Captopril. Monthly injection to prevent bronchial infections.
Baby’s Age at interview: 6 months. Diagnosed during pregnancy (20 weeks). Parents marital status: married. Occupation: Mother-Full time Mum, Father-Own Business. Other children: twin brother & 2 older children. The...
Their son was diagnosed with Tricuspid Atresia, a large VSD, ASD, small right ventricle and small pulmonary artery. Treatment: Modified BT Shunt and Atrial Septostomy at 24 hrs old. Cardiac catheters planned. Further operations planned when their child is older. Current medication: diuretics, aspirin, sytron, anti-reflux and lactulose.
Baby’s Age at interview: 3 months old. Diagnosed during pregnancy (21 weeks). Parents marital status: married. Occupation: Mother-Market Research Adviser, Father-Accountant. No other children. The family live close to a...
