Profiles

Here, you can find any of the interviews on this site.



Interview CH23

Caitlan was diagnosed with Pulmonary Atresia, VSD and Dextro cardia. Treatment: closed heart surgery at 48 hrs old and open heart surgery at 11 months old. Further surgery planned when their daughter is older. Current medication: none.

  • Background

    Age at interview 23 months. Diagnosed at 24 hours old. Parents marital status: married. Occupation: Mother-Full time mum, Father-Internet Engineer. Other children: one older child. The family do not live...

  • Sex/Gender Male
  • Interview CH22

    Millie was diagnosed with Coarctation of the Aorta and a VSD at 3 weeks old. Treatment: she had closed heart surgery to repair the coarctation and a band was put around the pulmonary artery at 3 weeks old. At 7 months old she had open heart surgery to repair her VSD. Current medication: captopril.

  • Background

    Age at interview: 16 months. Diagnosed at 3 weeks old. Parents marital status: married. Other children: one older child. The family live close by to a specialist hospital.

  • Sex/Gender Male
  • Interview CH04

    Their daughter was diagnosed with Truncus Arteriosus. Treatment: Surgery at 5 weeks old to fit a conduit and repair the hole. Cardiac catheterisation planned for pre-school. Current medication: captopril.

  • Background

    Diagnosed at 5 weeks old. Parents marital status: married. Occupation: Mother-Teacher, Father-Architect. Other children: one younger child (no heart problems). The family do not live very close to a specialist...

  • Age at interview 3
  • Sex/Gender Male
  • Interview CH10

    Their son was diagnosed with Transposition of the Great Arteries, ASD, VSD, Atrial Isomerism and Pulmonary Stenosis. He has Dextro cardia and Bronchial Isomerism. Treatment: none given yet, surgery planned for when their son is older. Current medication: ventolin & flixotide for asthma.

  • Background

    Baby’s Age at interview: 21 months. Diagnosed during pregnancy (20 weeks). Marital status: married. Occupation: Mother-Health & Social Care Consultant, Father-IT Consultant. Parents have one older child. Family live within...

  • Sex/Gender Male
  • Interview CH09

    Their son was diagnosed with Coarctation of the Aorta, PDA, Bicuspid Aortic Valve, Hypoplastic Aortic Arch, VSD, Mitral Stenosis and Pulmonary Hypertension. Treatment: Surgery at 3 weeks old, mitral valve replacement at 2.5 years. 2 cardiac catheterisations at 2 yrs and at 3 yrs. Further mitral valve replacement planned. Current medication: warfarin.

  • Background

    Diagnosed at 3 weeks old. Parents marital status: married. Occupation: Mother-Part time Secretary, Father-Bank Manager. Other children: one older child. The family do not live close by to a specialist...

  • Age at interview 4
  • Sex/Gender Male
  • Interview CH08

    Daniel was diagnosed with Tricuspid Atresia, Hypoplastic Right Ventricle, VSD and Transposition of the Great Arteries. Treatment: cardiac catheter at 24 hrs old, banding operation at 2 weeks old, followed by 1st stage Fontan at 10 months old. Further catheters and surgery planned. Current medication: warfarin.

  • Background

    Diagnosed during pregnancy (20 weeks). Parents marital status: married. Occupation: Mother-Full time Mum, Father-Retail Manager. Other children: one younger child. The family live close by to a specialist hospital.

  • Age at interview 3
  • Sex/Gender Male
  • Interview CH07

    Felix was diagnosed with Hypoplastic Left Ventricle, VSD, Mitral Atresia, Pulmonary Atresia, Right Atrial Isomerism, aorta arising from the right ventricle, TAPVD and Bilateral Superior Vena Cava and no spleen. Treatment: modified BT shunt (6 days old) open heart surgery (3 months and 6 months), 1st stage Fontan (10 months). Further surgery planned. Current medication: warfarin, enanapril, frusemide, penicillin.

  • Background

    Diagnosed during pregnancy (32 weeks). Parents marital status: married. Occupation: Mother-Civil Servant, Father-Police Officer. Other children: two older children and a younger sister. The family live close by to a...

  • Age at interview 3
  • Sex/Gender Male
  • Interview CH06

    Their daughter was diagnosed with Hypoplastic Right Heart Syndrome, Tricuspid Valve, Coarctation of the Aorta, Transposition of the Great Arteries. Treatment: A banding operation at 22 hrs old, repeated at 1 week old. A cardiac catheter at 10 months and a CP shunt at 1 yr. Further palliative operations planned. Current medication: Phenoxybenzamine Hydrochloride.

  • Background

    Baby’s ago at interview: 15 months. Diagnosed during pregnancy (20 weeks). Parents marital status: married. Occupation: Mother-Full time Mum, Father-Postman. Other children: one older child. The family live close by...

  • Sex/Gender Male
  • Interview CH05

    Joe was diagnosed with Di-George Syndrome and Tetralogy of Fallots. Treatment: one operation at 3 weeks old, 10 months and at 18 months old. Current medication: none.

  • Background

    Diagnosed at 6 hours old. Parents marital status: Separated. Occupation: Mother-Student. Other children: one older child. Family live close by to a specialist hospital.

  • Age at interview 2
  • Sex/Gender Male
  • Interview CH11

    Jack was diagnosed with Supraventricular Tachycardia (SVT), which was later diagnosed as Wolff-Parkinson-White Syndrome. Treatment: none given yet. A radio-frequency catheter ablation is planned at age 5-7 years. Current medication: none, amiodarone until age 1yr.

  • Background

    Age at interview: 16 months. Diagnosed during pregnancy (27 weeks). Parents marital status: cohabiting. Occupation: Mother-Nursery Manager, Father-Contracts Director. Other children: no other children. The family live close by to...

  • Sex/Gender Male