Here, you can find any of the interviews on this site.
Noah (2000-2001) was diagnosed with critical aortic stenosis at 12 hours old. He died aged 4 and a half months old following three operations to try to repair his heart. Noah spent 4 and a half months in intensive care.
Parents marital status: cohabiting. Occupation: Mother-Researcher, Father-Internet programmer. Other children: one child aged 5 weeks old. The family do not live close to a specialist hospital.
Toby was diagnosed with Tetralogy of Fallots and mild branch pulmonary stenosis at six weeks old. Treatment: he had a catheter at 6 months old and corrective open heart surgery at 8 months old. Current medication: none.
Diagnosed at 6 weeks old. Parents marital status: married. Occupation: Mother-Special Needs Teacher, Father-Special Needs (Night Care). Other children: one older child. The family live 2 hours away from the...
Luke (1996-2002) was diagnosed with coarctation of the aorta, transposition of the great arteries, VSD, pulmonary stenosis and double inlet left ventricle. He died when he was nearly 6 yrs old after his fourth operation (not including cardiac catheters).
Senior Housing Support Officer, single parent for 4 years. Luke’s natural father left before he was born ceasing all contact by 36mths. Met current husband in 2000, he had a...
Their son was diagnosed with mirror image, transposition of the great arteries, left sided valve atresia and pulmonary stenosis. Treatment: A BT Shunt at six months old, followed by the Stage 1 Glenn procedure at 4.5 yrs. Cardiac catheter operations every 2 yrs. Further surgery is planned. Current medication: aspirin.
Diagnosed at one week old. Parents marital status: married. Occupation: Mother-Full time Mum, Father-Ex-Dockyard Worker (now caring for son). Other children: one older child. The family do not live close...
Their son was diagnosed with a ventricular septal defect (VSD). Treatment' surgery to close hole and repair leaky valve at 3 years old. No further treatment planned. Current medication: none.
Diagnosed at one week old. Parents marital status: married. Occupation: Mother-Nursery Nurse, Father-Engineer. Other children: a twin sister. The family live close by to a specialist hospital.
Eleanor was diagnosed with pulmonary stenosis. Treatment: a balloon catheter operation at six weeks old. No further treatment planned. Current medication: none.
Diagnosed at 6 weeks old. Parents marital status: married. Occupation: Mother-Full time Mum, Father-long term sick. Other children: no other children. The family do not live close by to a...
Taylor was diagnosed with a complete Atrioventricular septal defect (AVSD). Treatment: surgery at 6 months old. No further treatment planned. Current medication: none.
Diagnosed during pregnancy (25 weeks). Parents marital status: married. Occupation: Mother-Full time Mum. Other children: an older child. The family do not live close by to a specialist hospital.
Sam was diagnosed with a complete Atrioventricular Septal Defect (AVSD), pulmonary atresia and right atrial isomerism. Other problems: No spleen and mal-rotation of the gut. Treatment' A BT shunt at 24 hrs old, followed by the Glenn procedure at 6 months. More surgery planned. Current medication: warfarin, penicillin.
Diagnosed during pregnancy (22 weeks). Parents marital status: single. Occupation: Mother-Full time Mum. Other children: twin brother and one older child. The family live close by to a specialist hospital.
Joshua was diagnosed with Atrioventricular Septal Defect (AVSD) and Down's syndrome. Treatment: surgery at 4 months to repair his AVSD. No further treatment planned. Current medication: aspirin.
Diagnosed at 2 days old. Parents marital status: married. Occupation: Mother-Children’s Book Designer, Father-Advertising. Other children: no other children. The family live close by to a specialist hospital.
Their daughter was diagnosed with ostium primum Atrial Septal Defect (ASD). Treatment: Surgery at 18 months old to close the hole with a dacron patch. Stitches in the mitral valve. No further surgery planned. Current medication: none.
Baby’s Age at interview: 3.5 years. Diagnosed during pregnancy (24 weeks). Parents marital status: married. Occupation: Mother-Doctor, Father-Doctor. Other children: one older child. The family live close by to a...
