Parents of children with congenital heart disease


In this section you can find out about the experience of having a child with congenital heart disease by seeing and hearing people share their personal stories on film. In partnership with the British Heart Foundation, researchers travelled all around the UK to talk to the parents of 30 children in their own homes. Find out what people said about issues such as diagnosis, talking to your child, surgery and impact on family. We hope you find the information helpful and reassuring.
You may also be interested in our other Heart sections.


This section is based on research by The University of Oxford.

Research Copyright 2019 University of Oxford All rights reserved


Supported by:
British Heart Foundation

Publication date: May 2003
Last updated: July 2018.
Review date: July 2020.

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