Here men with prostate cancer talk about how they find information about the condition. Many said that their doctors had given them plenty of information, and enough time to discuss various treatment options.
Richard was given plenty of information about all the possible treatments suitable for him.
He got the results of his PSA test and his Gleason score, and then discussed the treatment…
Richard also looked at websites which helped him to make his decision to have brachytherapy…
Some men knew very little about prostate cancer before they discovered that they had the disease. They had been happy to be guided by their doctors. For older men, or in cases where the cancer had spread, the options were more limited. A few men felt that they had been well informed but would like to have received more guidance from health care professionals. Some were aware that there is little agreement about what should be done at various stages of the disease.
Explains that after much debate his doctor agreed to a prostatectomy.
Concludes he was happy to be guided by the doctor in his decision for treatment.
Explains why he was discouraged from having radiotherapy.
Considers he was not offered any options in his treatment at all.
Explains why there were limited options for someone with advanced prostate cancer.
Concludes he had been well informed but would have liked more guidance.
Concludes he was well informed but was disappointed at the lack of consensus over what can be done.
Some men argued that they had not been given adequate information, and that health care professionals had failed to explain the treatment options. One man, who had had a radical prostatectomy, wished he had considered other possible options and side effects more carefully, and another man wished that his doctor had discussed self-help, alternative medicine and psychological aspects of care as well as physical treatments. Charities, support groups and other men who had experienced various treatments were all useful sources of advice, and some men said that they obtained far more information from these sources than from health care professionals.
Wishes he had considered other options and the side effects of a radical prostatectomy more…
Concludes he had not been given adequate information or advice from the professionals involved.
Wishes his doctor had discussed self-help, alternative treatments and psychological aspects of care.
Describes the useful advice and information he received from the Madam Curie charity.
Explains that his doctor was not helpful so he sought information from Cancerbackup and Prostate…
Concludes the fullest and most useful advice was from Prostate Cancer Charity.
Those who had access to the Internet found it extremely helpful, and at the time some American websites were thought to be particularly useful by the men we interviewed. Some men mentioned that websites provide more information than can be easily absorbed, but that information may be out of date. Some also felt that they had become ‘expert patients’, probably knowing more about prostate cancer than many of their doctors. Other men sought out books, pamphlets or journal articles for additional information.
Richard thought that he obtained better information from the Internet than from the pamphlets he…
Comments on the information he gained from American sites on the Internet.
Mike who was interviewed in 2007 was not impressed with the photocopies and leaflets he was given by the specialist. However, the leaflets provided the terms that he need to make internet searches. He spent two and a half months finding out about treatments (mainly via the internet) before deciding to have a robot-assisted laparoscopic radical prostatectomy.