Financial concerns for people with epilepsy

Many people with well-controlled epilepsy and in full time employment said that their condition did not affect them financially. Several people with poorly-controlled epilepsy also said that their finances were not affected in any major way. One woman, for example, reported that she and her husband were comfortable financially because of his pension and her part-time salary.

Explains that she has always worked and her epilepsy has not affected her financially.

Age at interview 33

Gender Female

Age at diagnosis 21

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Others found that having epilepsy did restrict them financially. Some discussed the possible financial restrictions linked to employment. People with poorly-controlled epilepsy often felt that they could not work in stressful, higher paid occupations, so their earning power was limited. One man explained how he did not apply for a more demanding, higher paid job because of his epilepsy. Another felt that his epilepsy had affected his education, and that his lack of qualifications restricted the type of job he could pursue.

His epilepsy affects the work he can do and his finances.

Age at interview 26

Gender Male

Age at diagnosis 18

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One man, diagnosed at the age of 27, was moved to another job because of his epilepsy, and suffered a big drop in pay. He also had problems with insurance, and advised finding the cheapest option.

His finances were affected when he was moved to another job; he advises seeking the cheapest…

Age at interview 43

Gender Male

Age at diagnosis 27

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It can sometimes be difficult to find an insurance company willing to insure someone with epilepsy since this may involve risks that are hard to assess. Some of the people we interviewed mentioned problems with getting car insurance. Others had difficulties with life insurance.

Explains that she had difficulties getting life insurance.

Age at interview 30

Gender Female

Age at diagnosis 17

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Financial restrictions particularly affected those people who were not working because they had poorly-controlled epilepsy. One woman explained that, although she wanted to work, she risked losing her benefits if she could not hold down the job. She recommended having a scheme which would enable people to use some of their benefits for future security.

Explains the risks involved if she works, and suggests that benefits should go towards future…

Age at interview 42

Gender Female

Age at diagnosis 6

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People who could not work because of their epilepsy discussed the financial constraints on their lives. Some said that they could not afford moving home, buying a car and going on holiday. Several of them also noted that personal happiness and well-being were more important than material quality of life.

Explains that, although there are financial restrictions, personal happiness is more important.

Age at interview 48

Gender Female

Age at diagnosis 10

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Some people with poorly-controlled epilepsy are entitled to claim certain social security benefits and to special concessions for travel see GOV.UK for more details.

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