Social life and public places
Having a social life can be difficult for people with an eating disorder. When people develop eating disorders they can become more distant and start...
The young people we talked with often lived at home with their families. Being diagnosed or treated for an eating disorder often had a major impact on their parents and carers, brothers and sisters and on extended family. Family relationships could also be affected when young people had moved out.
Young people said that family relationships were involved with their eating disorder in complex ways. Some felt that family issues in the family had played a role in them developing an eating problem in the first place. Parents and other family members were also often among the first to realise something was going wrong and to encourage people to get help. For some people, parents had been actively involved in treatment (e.g. family therapy) or took responsibility for care at home. Others had never even told their parents they had an eating problem. Whichever way, having an eating disorder often had a deep impact on how young people felt about their parents and family.
During the worst times, the eating disorder could take over every aspect of family life. Sometimes parents took time off work to be able to care for their child at home. Parents and siblings had to “accommodate” to the needs of the person with the eating disorder and were sometimes unable to go on holidays or spend time together outside of the house. When Zoe was very ill she was “constantly monitored” by one of her parents; Charlotte’s parents took the locks out of the bathroom; and some people were “locked in” the house and constantly followed to make sure they weren’t purging, exercising or running away.
It could be difficult for young people to see what their families were going through. Zoe saw her dad cry for the first time when her parents took her into hospital. Seeing their parents upset and desperate could make people feel guilty. Many had wanted to protect their parents’ feelings. Chloe, Craig and Zoe all said that the main reason they got help for the eating disorder was for the sake of their families. Katie and Fiona-Grace were upset to see the negative impact of the eating disorder on their family members as they always wanted to “please” people and make others happy. Although eating disorders mainly affected parent-child relationships the stress of dealing with an eating disorder could cause arguments between the parents too;
“Mum and Dad would have a massive argument about it and they’d be arguing all the time cos my Mum felt like my Dad was doing the wrong thing. I never want to see that happen again and it just caused problems between them and watch them being upset all the time.” -Jasmin
When trust was broken between parents and children it could leave a lasting impact. Young people said their parents had become so distrustful that they struggled to move on and trust their children again, even as they were getting better.
Sometimes people were looked after by their parents at home. This could be because they couldn’t go into hospital (because they didn’t want to, or didn’t fit certain criteria) or, for example, during the period between discharged from hospital and being well enough to return to school. Rachel was glad not to be admitted to hospital and was cared by her mum fulltime’
”There were no beds available so I was looked after by my mam 24/7. I owe my life to my mam as without her I would not be here today.” -Rachel
Sometimes parents had to take time off work, or a career break, to look after their children. Zoe’s parents worked “shifts” looking after her and she was with either one of them at all times. At this stage, parents were often fully in charge of what people ate at home, often with guidance and meal plans from the hospital.
It could be even harder for grandparents to understand eating disorders than it was for parents. Some said there was a generation gap with grandparents when it came to talking about mental health issues. Katie said her grandparents were from an “era” when difficult things weren’t really talked about. People often didn’t speak to their grandparents about eating problems and Nikki said her parents didn’t tell anyone else in the family, even when she was staying in hospital. Katherine didn’t speak with her grandparents face to face but knew that they talked about her weight behind her back. Some said their grandparents had made comments in passing about weight or food portions without realising how upsetting and insensitive people could find this. Others had different experiences. Rebekah had very supportive grandparents who she moved in with. Even though her grandmother had struggled to understand eating disorders or self-harm, she had always wanted to support her in every way she could.
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