Telling other people about a diagnosis of cervical abnormality CIN3/CGIN

Many of the women we spoke with talked about telling other people that they had CIN3 or CGIN. Some told their partner and close family when they were referred for colposcopy. Others, who knew only that they needed further investigations at this point, told their family once they had the diagnosis. Some said they told very few people at first, often only their mum and sisters. Later they told more people, including friends.

Doctors didnt know whether Rachel had cancer as well as CIN3. She told her partner just before…

Age at interview 36

Gender Female

Age at diagnosis 35

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Some women we talked to said that, at first, they were concerned about how to tell their partner because CIN3 is caused by HPV, which is sexually transmitted (see ‘HPV’). They were wary about how they might react and wary because of their own lack of knowledge on the subject, but partners were supportive (see ‘Relationships and sex’).

Some of the women we interviewed didn’t want to worry their mums so they told a close friend or only their partner at first. Several said they told colleagues, too, because they would be taking a few days off work. One woman, who worked in the police force, found it particularly hard to tell her male colleagues.

Over time, the women we spoke to usually told more people. They were often surprised to learn how many women, including some of their own friends, had had abnormal cervical screening test (smear) results, colposcopies or treatment for CIN. Some found this was very reassuring. Several said telling other people helped them to cope and also raised awareness of the condition.

Telling other people helped Melanie cope. She learned that her sister had had abnormalities too…

Age at interview 29

Gender Female

Age at diagnosis 29

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Maria said she told her family and a close friend that she had CGIN and CIN3 but didn’t tell anyone else. She didn’t want to be treated differently because she had abnormal cell changes. She felt that people often found the word ‘cancer’ frightening and she didn’t want to be pitied.

Maria had heard of CIN3 before because her sister-in-law had had it. She told her family and a…

Age at interview 34

Gender Female

Age at diagnosis 33

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Some women we spoke to said that they told their friends they’d had CIN3 because they hoped it would encourage them to go for cervical screening. If, afterwards, any of them had any questions or concerns, they were able to help or support them.

Friends or colleagues often talk to Colleen if theyve had abnormal results or been diagnosed…

Age at interview 25

Gender Female

Age at diagnosis 25

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Some of the women we talked to said they didn’t tell many people they had CIN3 because they had young children to care for and wanted to resume normal life as quickly as they could.

Lizzie says she tells more people about her experience of CIN3 now than she did at the time. She…

Age at interview 39

Gender Female

Age at diagnosis 36

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Some women we interviewed were wary of telling other people they’d had CIN3 or CGIN because it affected a private part of their body and was caused by HPV (see ‘HPV’). Many felt there was a stigma attached to having HPV and this made it difficult to talk openly about having CIN3. Some said that other people often related it to promiscuity, but stressed that women diagnosed with CIN3 should not feel embarrassed or ashamed because HPV is such a common virus. Several women found it particularly difficult telling their parents and a few found their reaction upsetting. However, some said their mums had been very understanding. One woman said her mum had looked for information on the internet and had found the Jo’s Cervical Cancer Trust website for her.

A couple of women said they didn’t tell many people because they felt embarrassed or that other people would judge them.

Ruth hasn’t told anyone she’s had CIN3 three times. She feels that it is very personal and, because it’s caused by HPV, other people could be judgmental.

Age at interview 41

Gender Female

Age at diagnosis 28

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Claire found it upsetting when some of her family felt it was her fault shed got CIN3 because…

Age at interview 32

Gender Female

Age at diagnosis 31

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Most people were understanding when women told them that they had CIN3. They’d often never heard of it before but tried to be supportive and reassuring. Some female friends and family went for cervical screening as a result, even though they’d missed appointments in the past. A few women we interviewed, though, said friends or family didn’t really understand, especially if they went on to have ongoing problems such as recurrences. Pam felt that, although reality TV star Jade Goody’s experience of cervical cancer had helped raise awareness of it, most people still had no idea what CIN was.

Pams family tried to reassure her that there was no need to panic or worry because CIN wasnt…

Age at interview 40

Gender Female

Age at diagnosis 38

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Janet, who had a hysterectomy when she was 37, felt wary of talking to her friends about it because it made them feel uncomfortable.

Janet felt that, because she was still young, friends found it difficult to talk to her about her…

Age at interview 49

Gender Female

Age at diagnosis 37

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