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Experiences of participating in the 100,000 Genomes Project

Overview

In this section, you can see and hear people share their personal stories of participating in the 100,000 Genomes Project. We talked to 32 people about their experiences of genomics research, in particular their experiences of taking part in the 100,000 Genomes Project. People we interviewed had not yet had results from the project. 

The 100,000 Genomes Project is a flagship project that aims to sequence 100,000 whole genomes from NHS patients with rare diseases, and their families, as well as people with common cancers. A few of the people we interviewed took part in earlier pilot studies before being transferred to the main project. 

Here, you can find out what people said about being asked to take part in genomic research, their reasons for taking part, the concerns they had, and their expectations for the future. 

 

 
 

This section is based on research by the Health Experiences Research Group.

Research Copyright 2019 University of Oxford All rights reserved

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