Profiles

Here, you can find any of the interviews on this site.



Interview AN44

Their daughter was diagnosed with ostium primum Atrial Septal Defect (ASD). Treatment' Surgery at 18 months old to close the hole with a dacron patch. Stitches in the mitral valve. No further surgery planned. Current medication' none. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD12.

  • Background

    Child’s age at Interview’ 3.5 years. Age at diagnosis during pregnancy (24 weeks). Parents marital status married. Occupation’ Mother-Doctor, Father-Doctor. Other children’ One older child. The family live close by...

  • Sex/Gender Female

    • Interview AN43

    Their son was diagnosed with Hypoplastic Left Ventricle, VSD, Mitral Atresia, Pulmonary Atresia, Right Atrial Isomerism, aorta arising from the right ventricle, TAPVD and Bilateral Superior Vena Cava and no spleen. Treatment' modified BT shunt (6 days old) open heart surgery (3 months and 6 months), 1st stage Fontan (10 months). Further surgery planned. Current medication' Warfarin, Enanapril, Frusemide, Penicillin. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD07.

  • Background

    Diagnosed during pregnancy (32 weeks). Parents marital status Married. Occupation’ Mother-Civil Servant, Father-Police Officer. Other children’ Two older children and a younger sister. The family live close by to a...

  • Sex/Gender Female

    • Interview AN42

    Their daughter was diagnosed with Hypoplastic Right Heart Syndrome, Tricuspid Valve, Coarctation of the Aorta, Transposition of the Great Arteries. Treatment' A banding operation at 22 hrs old, repeated at 1 week old. A cardiac catheter at 10 months and a CP shunt at 1 yr. Further palliative operations planned. Current Medication' Phenoxybenzamine Hydrochloride. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD06.

  • Background

    Child’s age at Interview’ 15 months. Age at diagnosis During pregnancy (20 weeks). Parents marital status Married. Occupation’ Full time Mum, Father-Postman. Other children’ One older child. The family live...

  • Sex/Gender Female

    • Interview AN41

    Their son was diagnosed with Tricuspid Atresia, a large VSD, ASD, small right ventricle & small pulmonary artery. Treatment Modified BT Shunt & Atrial Septostomy at 24 hrs old. Cardiac catheters & further operations planned when their child is older. Current Medication diuretics, aspirin, sytron, anti-reflux and lactulose. See this person's profile in our section parents of children with congenital heart disease

  • Background

    Age at Interview 3 months old. Age at diagnosis During pregnancy (21 weeks). Parents marital status Married. Occupation Mother-Market Research Adviser, Father-Accountant. No other children. The family live close to...

  • Sex/Gender Female

    • Interview AN40

    Down's syndrome detected by amniocentesis in first pregnancy. Couple decided to end the pregnancy. Baby son born since.

  • Background

    Children’ First pregnancy ended at 17 weeks. 1 child aged 11 months, Occupation’ Mother – Job Centre Admin Officer, Father – Job Centre Executive Officer, Marital status Married.

  • Age at interview 38
  • Sex/Gender Female

    • Interview AN38

    Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.

  • Background

    Children’ 2 (aged 12 and 3) and baby died shortly after birth, Occupation’ Mother – full-time mother, Father (age 36 at interview)- engineering inspector, Marital status Married.

  • Age at interview 39
  • Sex/Gender Female

    • Gugu - Interview 40

    Gugu was diagnosed 10 years ago. At first she was prescribed metformin. 3 years before the interview she was transferred to insulin.

  • Background

    Gugu works for a supported housing charity, and at the moment lives alone and has no children. Ethnic background/Nationality: Born in Zimbabwe.

  • Age at interview 43
  • Sex/Gender Female

    • Hyacinth - Interview 39

    Hyacinth was diagnosed 33 years ago after a pregnancy. In 1997 she was also diagnosed with breast cancer and has had two mini strokes. She takes metformin and gliclazide.

  • Background

    Hyacinth worked for the probation service before retirement and is married with 3 adult children. Ethnic background/Nationality: Jamaican.

  • Age at interview 63
  • Sex/Gender Female

    • Sylvia - Interview 38

    Diagnosed a year ago. Sylvia takes metformin, simvastatin and amlopidine.

  • Background

    Sylvia is an administrator who lives with her partner and has one son aged 11. Ethnic background/Nationality: Black British.

  • Age at interview 41
  • Sex/Gender Female

    • Mrs Patel - Interview 37

    Diagnosed 15 years ago. Mrs Patel takes metformin and insulin.

  • Background

    Mrs Patel is a retired shopkeeper who is married and has grown up children. Ethnic background/Nationality: Gujarati Hindu.

  • Age at interview 68
  • Sex/Gender Female