Profiles

Here, you can find any of the interviews on this site.



Interview CH07

Felix was diagnosed with Hypoplastic Left Ventricle, VSD, Mitral Atresia, Pulmonary Atresia, Right Atrial Isomerism, aorta arising from the right ventricle, TAPVD and Bilateral Superior Vena Cava and no spleen. Treatment: modified BT shunt (6 days old) open heart surgery (3 months and 6 months), 1st stage Fontan (10 months). Further surgery planned. Current medication: warfarin, enanapril, frusemide, penicillin.

  • Background

    Diagnosed during pregnancy (32 weeks). Parents marital status: married. Occupation: Mother-Civil Servant, Father-Police Officer. Other children: two older children and a younger sister. The family live close by to a...

  • Age at interview 3
  • Sex/Gender Male

    • Interview CH06

    Their daughter was diagnosed with Hypoplastic Right Heart Syndrome, Tricuspid Valve, Coarctation of the Aorta, Transposition of the Great Arteries. Treatment: A banding operation at 22 hrs old, repeated at 1 week old. A cardiac catheter at 10 months and a CP shunt at 1 yr. Further palliative operations planned. Current medication: Phenoxybenzamine Hydrochloride.

  • Background

    Baby’s ago at interview: 15 months. Diagnosed during pregnancy (20 weeks). Parents marital status: married. Occupation: Mother-Full time Mum, Father-Postman. Other children: one older child. The family live close by...

  • Sex/Gender Male

    • Interview CH05

    Joe was diagnosed with Di-George Syndrome and Tetralogy of Fallots. Treatment: one operation at 3 weeks old, 10 months and at 18 months old. Current medication: none.

  • Background

    Diagnosed at 6 hours old. Parents marital status: Separated. Occupation: Mother-Student. Other children: one older child. Family live close by to a specialist hospital.

  • Age at interview 2
  • Sex/Gender Male

    • Interview CH04

    Their daughter was diagnosed with Truncus Arteriosus. Treatment: Surgery at 5 weeks old to fit a conduit and repair the hole. Cardiac catheterisation planned for pre-school. Current medication: captopril.

  • Background

    Diagnosed at 5 weeks old. Parents marital status: married. Occupation: Mother-Teacher, Father-Architect. Other children: one younger child (no heart problems). The family do not live very close to a specialist...

  • Age at interview 3
  • Sex/Gender Male

    • Interview CH03

    Their son was diagnosed with Tricuspid Atresia, a large VSD, ASD, small right ventricle and small pulmonary artery. Treatment: Modified BT Shunt and Atrial Septostomy at 24 hrs old. Cardiac catheters planned. Further operations planned when their child is older. Current medication: diuretics, aspirin, sytron, anti-reflux and lactulose.

  • Background

    Baby’s Age at interview: 3 months old. Diagnosed during pregnancy (21 weeks). Parents marital status: married. Occupation: Mother-Market Research Adviser, Father-Accountant. No other children. The family live close to a...

  • Sex/Gender Male

    • Interview CH11

    Jack was diagnosed with Supraventricular Tachycardia (SVT), which was later diagnosed as Wolff-Parkinson-White Syndrome. Treatment: none given yet. A radio-frequency catheter ablation is planned at age 5-7 years. Current medication: none, amiodarone until age 1yr.

  • Background

    Age at interview: 16 months. Diagnosed during pregnancy (27 weeks). Parents marital status: cohabiting. Occupation: Mother-Nursery Manager, Father-Contracts Director. Other children: no other children. The family live close by to...

  • Sex/Gender Male

    • Interview CH01

    Their son was diagnosed with Hypoplastic Left Heart Syndrome. Treatment: Japanese Stage 1 Norwood at 4 days old and Stage 2 Norwood at 4 months old. Stage 3 is planned for pre-school. Heart Scan at local hospital every 3 months. Current medication: aspirin, Captopril. Monthly injection to prevent bronchial infections.

  • Background

    Baby’s Age at interview: 6 months. Diagnosed during pregnancy (20 weeks). Parents marital status: married. Occupation: Mother-Full time Mum, Father-Own Business. Other children: twin brother & 2 older children. The...

  • Sex/Gender Male

    • Interview CH31

    Vikram was diagnosed with a large ventricular septal defect (VSD) at 3 months old. He had corrective open heart surgery to close the VSD at four and a half months old. He is recovering well and no further treatment is expected. Current medication: none.

  • Background

    Baby’s Age at interview: 9 months. Diagnosed at 3 months old. Parents marital status: married. Occupation: Mother-Full time mum, Father-Information Technology. Other children: one older child. The family do not...

  • Sex/Gender Male

    • Interview CH30

    Their daughter was diagnosed with pulmonary atresia, VSD, and an overiding aorta. Treatment: closed heart surgery (shunt) at 11 days old, closed heart surgery (shunt) at 11 months old. Corrective open heart surgery at 2 and a half yrs old. Current medication: none.

  • Background

    Diagnosed at 10 days old. Parents marital status: married. Occupation: Mother-Full time mum (trained as a GP), Father-Curate. Other children: one younger child. The family lived close by to a...

  • Age at interview 3
  • Sex/Gender Male

    • Interview CH29

    Lee was diagnosed with Wolff-Parkinson-White Syndrome. Treatment: Flecainide up until 14 months old. Possibility of radio frequency ablation when Lee is older (age 10 plus). Current medication: none.

  • Background

    Diagnosed at 14 days old. Parents marital status: separated. Occupation: Mother-Civil Servant, Father-Painter & Decorator. Other children: 4 older children (2 were diagnosed with a heart murmur). The family do...

  • Age at interview 3
  • Sex/Gender Male