Here, you can find any of the interviews on this site.
Sylvia was diagnosed a year ago in 2005, after noticing difficulties walking. She can move around at home with a trolley, and uses a wheelchair or scooter outdoors. She uses non-invasive ventilation regularly.
Sylvia is a part-time book-keeper, married to an architect, with 6 adult children (including 4 step-children). Ethnic background/nationality: White British.
Ken was diagnosed with amyotrophic lateral sclerosis (ALS) form of MND 5 years ago (2002). His arm muscles were affected first, followed by his leg muscles. His speech is not affected and his condition has progressed more slowly than he originally expected.
Ken is a retired teacher, married with 3 adult children. Ethnic background/nationality: White British.
Cordelia was diagnosed a year ago (2005) with MND after investigations for other conditions including spinal muscular atrophy. She now has considerable muscle weakness.
Cordelia is a married housewife with 6 adult children. Ethnic background/nationality: White British.
Penny was diagnosed three years ago (2003) with ALS, after having arm weakness, pains and coughing fits for three years. The condition has progressed quite slowly so far.
Penny is a retired primary school headteacher, married with 2 adult children. Ethnic background/nationality: White British.
Kim was diagnosed with MND (ALS) about a year ago (2005). Now unable to walk she needs help with most daily tasks, but is still working as an occupational therapist and able to drive. Her speech is not affected.
Kim is an occupational therapist, married with 2 children, aged 12 and 10. Ethnic background/nationality: White British.
Maryse was diagnosed March 2005. She was told she had 2-3 years to live. Within months she could no longer live independently and moved into a nursing home. Her speech deteriorated rapidly.
Maryse is a retired senior university lecturer, widowed with 2 adult children. Ethnic background/nationality: French.
Marcelin was diagnosed over three years ago (in 2003), after several years of weakness in his arms, and later his legs. He now uses a wheelchair. His speech is unaffected. He continues to work full-time. (Partner Tess also interviewed, MND44).
Marcelin is a research and technology systems engineer, divorced, with 4 children aged 27, 20, 16 and 7. Ethnic background/nationality: African.
Martin was diagnosed about a year ago in 2006, after a year of weakness in his fingers and hands. Movement in his arms is now very limited, but his legs and speech are not affected.
Martin is an unemployed former building worker, single. Ethnic background/nationality: White British.
