Profiles

Here, you can find any of the interviews on this site.



Sylvia - Interview 25

Sylvia was diagnosed a year ago in 2005, after noticing difficulties walking. She can move around at home with a trolley, and uses a wheelchair or scooter outdoors. She uses non-invasive ventilation regularly.

  • Background

    Sylvia is a part-time book-keeper, married to an architect, with 6 adult children (including 4 step-children). Ethnic background/nationality: White British.

  • Age at interview 66
  • Sex/Gender Female
  • Ken - Interview 15

    Ken was diagnosed with amyotrophic lateral sclerosis (ALS) form of MND 5 years ago (2002). His arm muscles were affected first, followed by his leg muscles. His speech is not affected and his condition has progressed more slowly than he originally expected.

  • Background

    Ken is a retired teacher, married with 3 adult children. Ethnic background/nationality: White British.

  • Age at interview 60
  • Sex/Gender Male
  • Cordelia - Interview 13

    Cordelia was diagnosed a year ago (2005) with MND after investigations for other conditions including spinal muscular atrophy. She now has considerable muscle weakness.

  • Background

    Cordelia is a married housewife with 6 adult children. Ethnic background/nationality: White British.

  • Age at interview 76
  • Sex/Gender Female
  • Penny - Interview 11

    Penny was diagnosed three years ago (2003) with ALS, after having arm weakness, pains and coughing fits for three years. The condition has progressed quite slowly so far.

  • Background

    Penny is a retired primary school headteacher, married with 2 adult children. Ethnic background/nationality: White British.

  • Age at interview 59
  • Sex/Gender Female
  • Kim - Interview 10

    Kim was diagnosed with MND (ALS) about a year ago (2005). Now unable to walk she needs help with most daily tasks, but is still working as an occupational therapist and able to drive. Her speech is not affected.

  • Background

    Kim is an occupational therapist, married with 2 children, aged 12 and 10. Ethnic background/nationality: White British.

  • Age at interview 39
  • Sex/Gender Female
  • Maryse - Interview 06

    Maryse was diagnosed March 2005. She was told she had 2-3 years to live. Within months she could no longer live independently and moved into a nursing home. Her speech deteriorated rapidly.

  • Background

    Maryse is a retired senior university lecturer, widowed with 2 adult children. Ethnic background/nationality: French.

  • Age at interview 74
  • Sex/Gender Female
  • Marcelin - Interview 37

    Marcelin was diagnosed over three years ago (in 2003), after several years of weakness in his arms, and later his legs. He now uses a wheelchair. His speech is unaffected. He continues to work full-time. (Partner Tess also interviewed, MND44).

  • Background

    Marcelin is a research and technology systems engineer, divorced, with 4 children aged 27, 20, 16 and 7. Ethnic background/nationality: African.

  • Age at interview 55
  • Sex/Gender Male
  • Martin - Interview 40

    Martin was diagnosed about a year ago in 2006, after a year of weakness in his fingers and hands. Movement in his arms is now very limited, but his legs and speech are not affected.

  • Background

    Martin is an unemployed former building worker, single. Ethnic background/nationality: White British.

  • Age at interview 24
  • Sex/Gender Male