Profiles

Here, you can find any of the interviews on this site.



Derek - Interview 27

Derek was diagnosed 5-6 years ago (2001 or 2002). His arms and legs are affected but he is still able to walk unaided round the house. Finds his memory for words is being affected.

  • Background

    Derek is a retired general manager, married, with 6 adult children. Ethnic background/nationality: White British.

  • Age at interview 73
  • Sex/Gender Male
  • Peter - Interview 38

    Peter was diagnosed three years ago (2004). Symptoms started in his arms and hands, and progressed to his legs. He now uses a wheelchair full-time.

  • Background

    Peter is a retired civil servant, married. Ethnic background/nationality: White British (Polish origin).

  • Age at interview 56
  • Sex/Gender Male
  • Sandy - Interview 36

    Sandy was diagnosed 5 years ago (2002) after noticing weakness in one arm. His arms have been worst affected, and now his speech and neck muscles are deteriorating, but he can still walk well.

  • Background

    Sandy is a retired Royal Navy sub-mariner, married with 2 adult children. Ethnic background/nationality: White British.

  • Age at interview 59
  • Sex/Gender Male
  • Shyam - Interview 35

    Shyam was diagnosed with MND about six months ago (2006). He has difficulty walking and uses a wheelchair. His speech is slowing down and his voice is changing.

  • Background

    Shyam is a graphic designer/book illustrator, married with 1 adult daughter. Ethnic background/nationality: Indian British.

  • Age at interview 80
  • Sex/Gender Male
  • Slawomir - Interview 33

    Slawomir was diagnosed 3 months ago, 18 months after first noticing weakness in his leg. He wonders if he may in fact have Lyme Disease. He can still walk and drive.

  • Background

    Slawomir is a company director, divorced with 1 son aged 16. Ethnic background/nationality: Polish.

  • Age at interview 55
  • Sex/Gender Male
  • Jack - Interview 03

    Jack was diagnosed with MND a year before interview (2003), after some years of leg pain and stiffness. Symptoms have progressed slowly, still mainly leg weakness. He now uses a walking frame. (Wife Mary present, also interviewed separately MND04).

  • Background

    Jack is a retired graphic designer, married with 3 adult children. Ethnic background/nationality: White British.

  • Age at interview 61
  • Sex/Gender Male
  • Audrey - Interview 02

    Audrey first noticed symptoms 11-12 years ago. Diagnosis confirmed three years later (1995). Still living at home with support from a daily carer and respite care in a hospice.

  • Background

    Audrey is a retired post office clerk, widowed, with 2 grown-up stepchildren. Ethnic background/nationality: White British.

  • Age at interview 70
  • Sex/Gender Female
  • Michael - Interview 29

    Michael was diagnosed less than a year ago in 2006 after noticing weakness in his right arm. His arm weakness remains his main symptom, and it has got worse. Currently he is on sick leave from work.

  • Background

    Michael is a business manager (motor sales), married with 2 children, aged 11 and 9. Ethnic background/nationality: White British.

  • Age at interview 40
  • Sex/Gender Male
  • Phil - Interview 28

    Phil was diagnosed just over a year ago, after nearly 2 years of leg weakness. He is still able to walk at home but uses a wheelchair and scooter outdoors. He has some weakness in his right arm.

  • Background

    Phil is a retired transporter fleet controller, married, with 2 adult children. Ethnic background/nationality: White British.

  • Age at interview 60
  • Sex/Gender Male
  • Stuart - Interview 05

    Stuart first noticed symptoms (legs shaking) almost 20 years ago. MND diagnosed 9 years ago (1997), after years of tests and investigations. Now uses a wheelchair.

  • Background

    Stuart is a retired electrician, married with 3 grown-up children. Ethnic background/nationality: White British.

  • Age at interview 62
  • Sex/Gender Male