Profiles

Here, you can find any of the interviews on this site.



Interview CH30

Their daughter was diagnosed with pulmonary atresia, VSD, and an overiding aorta. Treatment: closed heart surgery (shunt) at 11 days old, closed heart surgery (shunt) at 11 months old. Corrective open heart surgery at 2 and a half yrs old. Current medication: none.

  • Background

    Diagnosed at 10 days old. Parents marital status: married. Occupation: Mother-Full time mum (trained as a GP), Father-Curate. Other children: one younger child. The family lived close by to a...

  • Age at interview 3
  • Sex/Gender Male
  • Interview CH29

    Lee was diagnosed with Wolff-Parkinson-White Syndrome. Treatment: Flecainide up until 14 months old. Possibility of radio frequency ablation when Lee is older (age 10 plus). Current medication: none.

  • Background

    Diagnosed at 14 days old. Parents marital status: separated. Occupation: Mother-Civil Servant, Father-Painter & Decorator. Other children: 4 older children (2 were diagnosed with a heart murmur). The family do...

  • Age at interview 3
  • Sex/Gender Male
  • Interview CH20

    Toby was diagnosed with Tetralogy of Fallots and mild branch pulmonary stenosis at six weeks old. Treatment: he had a catheter at 6 months old and corrective open heart surgery at 8 months old. Current medication: none.

  • Background

    Diagnosed at 6 weeks old. Parents marital status: married. Occupation: Mother-Special Needs Teacher, Father-Special Needs (Night Care). Other children: one older child. The family live 2 hours away from the...

  • Age at interview 3
  • Sex/Gender Male
  • Interview CH15

    Taylor was diagnosed with a complete Atrioventricular septal defect (AVSD). Treatment: surgery at 6 months old. No further treatment planned. Current medication: none.

  • Background

    Diagnosed during pregnancy (25 weeks). Parents marital status: married. Occupation: Mother-Full time Mum. Other children: an older child. The family do not live close by to a specialist hospital.

  • Age at interview 3
  • Sex/Gender Male
  • Interview CH14

    Sam was diagnosed with a complete Atrioventricular Septal Defect (AVSD), pulmonary atresia and right atrial isomerism. Other problems: No spleen and mal-rotation of the gut. Treatment' A BT shunt at 24 hrs old, followed by the Glenn procedure at 6 months. More surgery planned. Current medication: warfarin, penicillin.

  • Background

    Diagnosed during pregnancy (22 weeks). Parents marital status: single. Occupation: Mother-Full time Mum. Other children: twin brother and one older child. The family live close by to a specialist hospital.

  • Age at interview 3
  • Sex/Gender Male
  • Interview CH13

    Joshua was diagnosed with Atrioventricular Septal Defect (AVSD) and Down's syndrome. Treatment: surgery at 4 months to repair his AVSD. No further treatment planned. Current medication: aspirin.

  • Background

    Diagnosed at 2 days old. Parents marital status: married. Occupation: Mother-Children’s Book Designer, Father-Advertising. Other children: no other children. The family live close by to a specialist hospital.

  • Age at interview 1
  • Sex/Gender Male
  • Interview CH12

    Their daughter was diagnosed with ostium primum Atrial Septal Defect (ASD). Treatment: Surgery at 18 months old to close the hole with a dacron patch. Stitches in the mitral valve. No further surgery planned. Current medication: none.

  • Background

    Baby’s Age at interview: 3.5 years. Diagnosed during pregnancy (24 weeks). Parents marital status: married. Occupation: Mother-Doctor, Father-Doctor. Other children: one older child. The family live close by to a...

  • Sex/Gender Female