Georgia is 26 and works full time as a nanny and personal trainer. Ethnicity: white British. Georgia's mum and aunt were diagnosed with MND just a couple of months apart. She cared for her mum over her illness. After her mum died, Georgia decided to have pre-symptomatic genetic testing, and was told she does not carry the C9orf72 gene variant.

• Inherited motor neurone disease (MND) - Family members with a negative pre-symptomatic genetic test result

Kirsty is 35 and works full time as an IT manager. Ethnicity: White British. Kirsty's grandmother and two uncles have been affected by MND and FTD. After having pre-symptomatic genetic testing, her mum was told that she does not carry the C9orf72 gene variant. Kirsty feels grateful that her immediate family will not be affected.

• Inherited motor neurone disease (MND) - Family members with a negative pre-symptomatic genetic test result

Kelly is 30 and is married. She works full time as a Service Administrator. Ethnicity: White British Kelly's family has been affected by MND and FTD, caused by the C9orf72 gene variant. Kelly decided to seek pre-symptomatic genetic testing to make an informed choice on having children. After facing several challenges, she has received a negative result.

• Inherited motor neurone disease (MND) - Family members with a negative pre-symptomatic genetic test result

Maggie is 68 and is a retired paediatric nurse. She is married with two adult children who are 34 and 43. Ethnicity: white British Maggie found out about MND in her family when her brother was diagnosed, 30 years after their mum developed symptoms. Although she was initially reluctant to pursue genetic testing, she recently found out that she does not carry the C9orf72 gene variant.

• Inherited motor neurone disease (MND) - Family members with a negative pre-symptomatic genetic test result