Helen X

Helen X had a very straightforward pregnancy. However, at her 32 week GP appointment her blood pressure was found to be high. Her blood pressure was monitored over 5 days, then HELLP syndrome diagnosed. Her son was delivered by emergency caesarean and spent 3 weeks in the neo-natal unit.

Helen X’s first pregnancy was going smoothly. She was exercising well and keeping healthy. Her care was a mixture of hospital and GP appointments. However at 32 weeks she started to feel increasingly uncomfortable, and found sleeping very difficult. At a routine GP appointment (on a Thursday) her blood pressure was found to be high, but she had none of the other usual symptoms for pre-eclampsia. Her blood pressure was monitored closely in the hospital for the first couple of days but because she was border-line they were unsure about whether to put her on the medication.

Doctors decided against admitting her to hospital over the weekend but when she went back for further tests on the Monday, they decided that they would keep her in overnight to monitor her and try to make a decision about the medication. Blood tests overnight revealed that her liver was failing, so she was woken on Tuesday morning to the news that her baby was going to be delivered that day by emergency caesarean. She was able to text her partner to tell him the news and he rushed to hospital. After a morning of further tests and visits from lots of doctors, her son was delivered in the early afternoon, at 32 weeks, 6 days.

Both she and her partner (Michael) described receiving a lot of information that morning, but not really taking it in, almost information overload. Their son was well, but too tiny to suck so sent to the neo-natal unit where he stayed for 3 weeks. Helen X was able to hold him for a few minutes before he was taken away. She had to stay in a high dependency unit (HDU) for 2 days while they stabilized her blood pressure and liver, and then another week on the post-labour ward. She was initially on the general ward but the staff were soon able to give her a side room, so she wasn’t surrounded by new mothers with their babies, which she really appreciated. Helen X went upstairs to visit her son regularly, giving him cuddles, changing his nappy and helping with feeds. She was able to establish breastfeeding eventually, expressing in the early weeks before he was strong enough to suckle. She also needed a nipple shield to help, which they were still using at 14 weeks, at the time of the interview. Helen X was discharged a couple of weeks before her son, so she visited daily during that time. Since he has been home he has made good progress, feeding well and putting on weight well. They are planning a trip home to Australia and then several months travelling in the United States 10 days after the interview.

Helen X’s baby was one of the healthiest babies on the Neonatal Intensive Care Unit (NICU). She was taking her son to a hospital check-up appointment soon but this was the first since he was discharged.

Age at interview 31

Gender Female

Age at diagnosis 31

Helen X found it helpful when her husband used an analogy that there was not only one correct’s way to look after their baby and so she need not worry too much.

Age at interview 31

Gender Female

Age at diagnosis 31

Helen X had blood tests to check her liver was recovering in the weeks after she gave birth.

Age at interview 31

Gender Female

Age at diagnosis 31

Helen X’s baby stayed in hospital for two weeks after she was discharged. It was a stressful time but she tried not to let it show when she spent time with her son.

Age at interview 31

Gender Female

Age at diagnosis 31

Helen X was sent to a High Dependency Unit immediately after her baby was delivered by caesarean section. She stayed there for two days, although her memories of this are blurry in parts.

Age at interview 31

Gender Female

Age at diagnosis 31

There were lots of people in the operating theatre when Helen X had an emergency caesarean section. One of her doctors sent an emergency page out saying she was bleeding, even though she wasn’st, to be sure it was treated urgently.

Age at interview 31

Gender Female

Age at diagnosis 31

Helen X didn’st mind recovering in hospital for a bit longer after giving birth. Her baby was in the Neonatal Intensive Care Unit, so being in hospital made it easier to see him.

Age at interview 31

Gender Female

Age at diagnosis 31

Helen X was frustrated that clinicians often forgot to introduce themselves when they came to visit her.

Age at interview 31

Gender Female

Age at diagnosis 31

At 32 weeks into her pregnancy, Helen X agreed to stay in hospital overnight to check that medication to lower her blood pressure was working. It came as a shock when she was told the situation had become more serious and her baby would be born that day.

Age at interview 31

Gender Female

Age at diagnosis 31

Helen X recalled her GP explaining to a medical student that pre-eclampsia was more than high blood pressure and that there can be other symptoms.

Age at interview 31

Gender Female

Age at diagnosis 31

Helen X had high blood pressure at a routine antenatal appointment. She wasn’st worried about it at first and her GP agreed to let her test it again a few hours later. She was admitted to hospital for more tests when her blood pressure remained high.

Age at interview 31

Gender Female

Age at diagnosis 31