Shaista

Gender: Female
Ethnicity: Pakistani
Background: Shaista is in her 40s and is Pakistani. She works full time as a journalist and a city councilor. Shaista developed Covid symptoms in March, before Covid testing was available. When she did get tested, she came back negative for Covid. Shaista’s GP diagnosed her with long Covid in January, but she has been unable to attend a long Covid clinic.

Shaista became aware of Covid in early 2020 by following articles in the news. While travelling with her mum to perform pilgrimage in February, she remembers seeing lots of people in the airport travelling to countries which may have been entry point for Covid. Shaista started to feel unwell at the time, and her symptoms developed into coughing and fatigue by March 2020. Later, Shaista’s symptoms included an eye infection and a fever, which came and went every few days.

As testing for Covid wasn’t publically available, Shaista phoned the NHS hotline where she felt dismissed and not listened t. Shaista explained that people of colour have historically been failed by the medical profession but was only told that’s the best [the hotline] can offer at the momen. When testing became available, Shaista tested negative but still suspected that she was unwell. She says the experience felt like gaslightin.

Shaista found that her GP was very compassionate and very carin, and in January 2021 they diagnosed Shaista with long Covid. Despite being referred to a long Covid clinic at the time, Shaista hadn’t received a referral from the clinic by June.

Shaista decided to go publi with her diagnosis to raise awareness that everyone’s Covid experience is uniqu, and found a number of friends had received the same diagnosis. She felt that the rhetoric from the Government was disgracefu and may explain some of the stigma surrounding long Covid. She also points out the narrative in the media about Covid is laced in racism and bigotr, as the people most likely to be hurt by Covid are blamed for spreading the diseas.

Shaista found that her physical and mental health were both affected when ten people she were connected to passed away due to Covid over the course of three days. Shaista feels that her mental health is now something she’s really aware of more than any other tim and her life has changed a lo. She plans to take each day as it come and thinks that addressing structural racism as well as building trust with healthcare professionals should be prioritised as part of recovering from the pandemic.

Shaista experienced different effects from her first and second doses of vaccine on her Long Covid symptoms.

Age at interview 45

Shaista described how images connected particular groups with disease spread.

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Shaista liked to use a mix of ‘conventional’ medicine and herbal remedies.

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Shaista said it was shocking that the government wanted to absolve its responsibility for the pandemic and blame people individually for their behaviour.

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Shaista recognised that some people didn’t want to test because they couldn’t afford to take time off work.

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Shaista wondered ‘if you don’t have a car, how do you get there?’ about travelling to test centres.

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Shaista became ill in March 2020. She isolated in her room to help protect her mother.

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Shaista got information from news and personal connections. She has also learnt a lot through listening to people talk about their experiences.

Age at interview 45