Hannah

Hannah was diagnosed with psoriasis at age 16. She found it difficult to accept having a life-long condition and finds that it requires her to think much more about her health than her peers do. Hannah’s current psoriasis treatment is biological injections.

Hannah has had psoriasis since the age of 16. She initially had a small patch on her scalp which she thought might have been dandruff or eczema. When shop-bought anti-dandruff shampoos didn’t help, she visited her GP. She was referred to a dermatologist who diagnosed it as psoriasis. Over time and in response to coming off different medications, her psoriasis has changed in severity and affected locations of her body. She prefers to cover the psoriasis on her arms and legs, for example, with clothing and make-up. She finds that skin flakes can be difficult to remove or hide, especially on her scalp. Hannah finds that winter is worse for her psoriasis, but she’s not sure about other triggers such as foods. There is an emotional part to psoriasis for Hannah, but she’s not sure whether stress and depression are triggers or consequences of having her skin condition.

Hannah has tried a number of treatments, including steroid creams and moisturisers, phototherapy, methotrexate and cyclosporine. However, these treatments either had bad side-effects or eventually stopped working. For example, Hannah tried cyclosporine but stopped after a few months because of headaches, nausea, fatigue and low mood. Her psoriasis then became more severe, meaning that she was then eligible for a biologic injection. Hannah researched about these on a forum and requested Stelara (ustekinumab) from her dermatologist after weighing up the pros and cons. Hannah is very happy with this current treatment because it has reduced her psoriasis coverage to <3% with only a few small patches on her scalp, torso, back and a few fingernails.

Hannah’s type of psoriasis has changed over time from plaque to guttate psoriasis. She found that the guttate psoriasis was more difficult to treat with creams because it was tricky to apply to the many small droplet-like patches. Stelara has helped clear up these patches but Hannah is now left with pigmentation changes to the skin on her arms and legs. She was not told by her doctors that she might be left with these darker and lighter marks on her skin. She’s sometimes self-conscious about this change to the skin which she says looks like a leopard. For Hannah, the slowness of skin in healing is very hard because it involves a lot of waiting rather than instant results.

Hannah found it a struggle to come to terms with having psoriasis. It was difficult to accept having a life-long condition which requires her to think much more about her health than her peers. For instance, she’s is careful to check her joints for psoriatic arthritis. Psoriasis has had a social impact for Hannah, in particular whilst she was on cyclosporine because it impacted on her mood. At that time, psoriasis was all-consuming for her as she felt a need to talk about it a lot with her family whilst trying to hide it from her friends. She didn’t want to go out much and often found herself cancelling plans. It was only once her psoriasis was very well managed with biologic injections and that she felt more confident enough to tell her friends about having psoriasis.

Hannah’s advice to other young people with psoriasis is to research about the condition. Hannah uses forums to learn about psoriasis and hear personal experiences of using different treatments. Hannah’s advice to doctors is to offer more support with the psychological and emotional side of psoriasis. For example, she fills in a questionnaire about how she’s feeling at every dermatology appointment but finds that the results aren’t discussed in detail or acted upon, such as with offers for counselling referrals.

Hannah encourages GPs to refer to dermatologists (if they are unsure about treating psoriasis) and counselling (if the person with psoriasis is struggling).

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah didn’t tell her friends about having psoriasis for several years. She tried to keep her psoriasis hidden while at university, which meant it took her longer to get ready before going out.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah talks about how the emotional impacts of psoriasis affected her friendships and social life, including dropping out of plans.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah finds biological injections are working well for her, but thinks diet and healthy living is important too.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah learnt a lot about psoriasis treatments on a support forum. This is where she first heard about biological medicine injections.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah’s psoriasis flared up when she stopped taking cyclosporine. She was then eligible for a biological medicine injection.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah thinks there’s usually an order to the biological injections prescribed, but her doctors agreed to her choosing a particular one (ustekinumab).

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah says she had a number of side effects while taking cyclosporine, including disrupted mood which impacted on her relationships with friends and family.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah still needs blood tests but has now she’s on Stelara (ustekinumab injections) than when she took methotrexate.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah finds a soap substitute helps her skin.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah will stop systemic psoriasis treatment when she’s planning to have children.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah’s found there are downsides to using medicated shampoos.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah helped educate her dermatologist about online psoriasis forums.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah was able to choose which dermatology department she could be referred to. She researched this and chose one at a medical teaching hospital.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah completes questionnaires about emotional impacts of psoriasis at her dermatologist visits, but the results aren’t usually talked about.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah researched treatment options and asked her dermatologist to prescribe biological injections.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah can’t have live vaccines whilst on biological injections, impacting on where she can travel in the world.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah thinks there are particular mental health issues related to having a skin condition like psoriasis.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah says psoriatic arthritis is an extra worry that most of her peers don’t have to think about.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah talks about the difficulties of working out triggers.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah looked into alternative deodorants when she had psoriasis on her armpits.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah talks about her experiences with nail psoriasis on her hands.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah talks about her history of skin conditions, including changing from plaque to guttate psoriasis.

Age at interview 24

Gender Female

Age at diagnosis 16

Hannah finds she often compares her skin to that of others. She hopes the hyperpigmentation from psoriasis will improve with time.

Age at interview 24

Gender Female

Age at diagnosis 16