Gerald

Gerald was diagnosed with gout in 1980. He has had around 12 attacks in the last 12 months which have affected his feet, ankles, knees and hands. In the past he took allopurinol, but he has recently started taking febuxostat.

In 1980, Gerald experienced bad pains in his feet, ankles and knees. He went to see his GP, who did some blood tests and diagnosed Gerald with gout. Both Gerald’s parents had been diagnosed with gout, although at the time he was a teenager and did not realise how much pain they were in. None of Gerald’s three brothers have gout, but Gerald’s son has also now been diagnosed with gout.

Gerald has had attacks in his feet, ankles and knees, and has now started to get tophi on his hands. He believes that people who have not had gout do not realise how bad the pain is, and it affects him non-stop for 24 hours a day. At times, Gerald felt like he could not carry on any longer. On one occasion he was in so much pain that he asked his specialist to amputate his leg.

Gerald’s life has changed dramatically since he has had gout. He used to enjoy going for walks or to watch his local football team, but now finds that the constant pain makes it too difficult. Being in pain has also reduced his level of interest in doing things, but he does enjoy spending time with his grandchildren.

Some mornings Gerald’s wife has to help him to get dressed, and he has had special shoes made by the hospital to fit his feet. He was unable to get around his previous house because of the stairs. Social services arranged for some adaptations to the house, but then arranged for Gerald and his wife to move to a bungalow four years ago. Gerald is pleased with the bungalow. He still struggles to get around, but finds it much easier than he did in the house. He has a walk-in shower and wet room, and his armchairs have been raised to make it easier for him to sit down.

Having gout affected Gerald at work before he retired. His manager was not sympathetic, and Gerald was told that he would receive a smaller annual pay rise because he had had time off sick. When he was 51, Gerald could no longer continue working because of his gout attacks, and had to retire.

Gerald has tried various medications, but has not found anything that had controlled his gout. He has changed his diet after discussions with a dietician at his local hospital, but has not noticed any impact on his gout. He has attacks of gout every few weeks around 12 in the last 12 months. Gerald is Catholic, and sometimes prays to ask for help to cope with gout.

Gerald’s GP referred him to see a rheumatologist at his local hospital. He was prescribed allopurinol, and his dose was increased over time because he was still experiencing attacks. However, by the time Gerald was taking the maximum dose of 900mg, he also had liver and kidney problems so his dose had to be reduced. About three years ago, Gerald was referred to a different consultant at the hospital who specialised in gout. In the last eight months, Gerald’s specialist has prescribed febuxostat for him to try as an alternative to allopurinol.

Gerald says living with gout might be difficult, but there are people out there who want to help.

Age at interview 67

Gender Male

Gerald believes that when someone looks well and has no obvious injuries, other people do not think that they could still have severe pain.

Age at interview 67

Gender Male

It makes a big difference to Gerald that his specialist is supportive and he can contact him when he needs to.

Age at interview 67

Gender Male

Gerald thinks people often see gout as a joke and a rich man’s disease because they don’t know anything about it.

Age at interview 67

Gender Male

Gerald feels frustrated that there are few television programmes or newspaper articles about gout.

Age at interview 67

Gender Male

Gerald used to feel he could go to work or the pub when he had an attack, but no longer wants to. He feels that attacks take the stuffing out’ of him more now.

Age at interview 67

Gender Male