Fatima

Fatima discovered that she had HIV in 2016 when pregnant with her first child. Her husband also has HIV and their family do not know about their diagnosis.

When the doctors in the country Fatima grew up in found out she had HIV, they gave her temporary medication, and would ask her at every medical visit when she would be leaving the country. As non-nationals of that country, it was not possible to live with HIV there. This caused Fatima great distress and it took her and her husband one and a half years of struggle and two solicitors to get the correct visa paperwork in order to leave the country and come to the UK. This has been a horrible experience for her. She feels embarrassed and ashamed due to the way she was treated by the system there. She has been seeing a psychologist and has been troubled by fear and depression ever since.

Fatima had a low immune system throughout her pregnancy and was troubled by symptoms which caused pain, and also infections, for which she was unable to take antibiotics or painkillers, due to allergies.

The doctors in her previous country told Fatima not to breastfeed her first child, because she had not been taking HIV medication during her pregnancy. She was given tablets to stop her breast milk. Fatima recalls the huge relief she felt when their eldest child tested negative when they came to the UK. Fatima and her husband have made the decision to formula feed their second baby as well, as they don’t want to take any kind of risk.

Fatima says they have been given formula milk free of charge which is really helping financially. Family members have asked why she is bottle feeding her child, because they do not know about their HIV. Fatima has told them she is bottle feeding because her breast milk is not coming Feeling unable to tell her family about her diagnosis has been very difficult for Fatima.

Fatima feels there needs to be social care support available during pregnancy.

Age at interview 30

Age at diagnosis 24

Fatima grew up in the Middle East, but her nationality is Indian. She describes when she and her husband were diagnosed in a Middle Eastern country.

Age at interview 30

Age at diagnosis 24

Fatima considered abortion because she was worried about HIV transmission.

Age at interview 30

Age at diagnosis 24

Fatima felt well taken care of throughout her pregnancy by her midwife. When she was struggling with her mental health the midwife helped her to access support.

Age at interview 30

Age at diagnosis 24