Here, you can find any of the interviews on this site.
Her daughter was diagnosed with Partial Ventricular Septal Defect after GP noticed a heart murmur when she was two. Treatment' open heart surgery to repair hole and mend the valve at 2' yrs old. Pacemaker fitted 5 days after surgery. Possibility of further surgery in the future. Current medication' none.
Parents marital status separated. Occupation’ M-Nursery Manager, F-Recruitment Officer. Other children’ one older child. The family do not live close by to a specialist hospital.
Andre was diagnosed with Hypertrophic Cardiomyopathy at 3 months old. Treatment: he takes Verapamil and has to limit his physical activities. He has annual check ups. Her 6 month old daughter has a VSD, diagnosed when she was 3 months old. It is expected that the hole will close on it's own, without the need for treatment.
Diagnosed at 3 months. Parents marital status: married. Occupation: M-Cardiomyopathy Association, F- Sales & Marketing Manager. Other children: 6 mths old and 3 yrs old. The family do not live...
Their son was diagnosed with Bradycardia during pregnancy. A VSD, PDA and a double aortic arch were diagnosed when he was 3 weeks old. Treatment: surgery at 8 weeks old to correct double aortic arch and to close pulmonary duct artery. Increasing drop in heartbeat (Bradycardia) led to emergency pacemaker fitted at 6yrs old. Current medication: none.
Diagnosed during pregnancy (17 weeks). Parents marital status: married. Occupation: Mother-Full time Mum, Father-Barrister. Other children: no other children. The family live close by to a specialist hospital.
Caitlan was diagnosed with Pulmonary Atresia, VSD and Dextro cardia. Treatment: closed heart surgery at 48 hrs old and open heart surgery at 11 months old. Further surgery planned when their daughter is older. Current medication: none.
Age at interview 23 months. Diagnosed at 24 hours old. Parents marital status: married. Occupation: Mother-Full time mum, Father-Internet Engineer. Other children: one older child. The family do not live...
Millie was diagnosed with Coarctation of the Aorta and a VSD at 3 weeks old. Treatment: she had closed heart surgery to repair the coarctation and a band was put around the pulmonary artery at 3 weeks old. At 7 months old she had open heart surgery to repair her VSD. Current medication: captopril.
Age at interview: 16 months. Diagnosed at 3 weeks old. Parents marital status: married. Other children: one older child. The family live close by to a specialist hospital.
Their daughter was diagnosed with Total Anomalous Pulmonary Venous Circulation. She had open heart surgery at 5 months old. Current medication: none.
Diagnosed at 4 months. Parents marital status: married. Occupation: Mother-Social Worker, Father-Civil Servant. Other children: one older child. The family do not live close to a specialist hospital.
Thomas was diagnosed with Tricuspid Atresia, Transposition of the Great Arteries and Coarctation of the Aorta. Treatment: An arterial switch operation at 36 hrs old followed by a BT shunt at 5 months, a Kawashima at 33 months and a Fontan at age 7. Current medication: wafarin.
Diagnosed during pregnancy (18 weeks). Parents marital status: Separated. Occupation: Mother-Full time Mum. No other children. The family do not live close to a specialist hospital.
Their son was diagnosed with Transposition of the Great Arteries, ASD, VSD, Atrial Isomerism and Pulmonary Stenosis. He has Dextro cardia and Bronchial Isomerism. Treatment: none given yet, surgery planned for when their son is older. Current medication: ventolin & flixotide for asthma.
Baby’s Age at interview: 21 months. Diagnosed during pregnancy (20 weeks). Marital status: married. Occupation: Mother-Health & Social Care Consultant, Father-IT Consultant. Parents have one older child. Family live within...
Their son was diagnosed with Coarctation of the Aorta, PDA, Bicuspid Aortic Valve, Hypoplastic Aortic Arch, VSD, Mitral Stenosis and Pulmonary Hypertension. Treatment: Surgery at 3 weeks old, mitral valve replacement at 2.5 years. 2 cardiac catheterisations at 2 yrs and at 3 yrs. Further mitral valve replacement planned. Current medication: warfarin.
Diagnosed at 3 weeks old. Parents marital status: married. Occupation: Mother-Part time Secretary, Father-Bank Manager. Other children: one older child. The family do not live close by to a specialist...
Daniel was diagnosed with Tricuspid Atresia, Hypoplastic Right Ventricle, VSD and Transposition of the Great Arteries. Treatment: cardiac catheter at 24 hrs old, banding operation at 2 weeks old, followed by 1st stage Fontan at 10 months old. Further catheters and surgery planned. Current medication: warfarin.
Diagnosed during pregnancy (20 weeks). Parents marital status: married. Occupation: Mother-Full time Mum, Father-Retail Manager. Other children: one younger child. The family live close by to a specialist hospital.
