Experiences of participating in the 100,000 Genomes Project

• Overview
• Recruitment and information
  • What is genomic research?
  • Being invited to the 100,000 Genomes Project
  • What people knew about the 100,000 Genomes project before taking part
  • Getting information about the 100,000 Genomes Project
• Making the decision
  • Concerns with taking part in the 100,000 Genomes Project
  • Reasons for wanting to take part
  • Deciding to take part in the 100,000 Genomes Project
  • Thoughts on medical research and genomic medicine
• Process of taking part
  • Giving consent to the 100,000 Genomes Project
  • Giving a sample to the 100,000 Genomes Project
• Data protection and storage
  • Data protection and sharing in the 100,000 Genomes Project
  • Sample Storage in the 100,000 Genomes Project
  • Thinking about the future after participating in the 100,000 Genomes Project
• Receiving results
  • What people expected from the 100,000 Genomes Project
  • Contact with the 100,000 Genomes Project after taking part
• Messages to others
  • Messages for other families about taking part in the 100,000 Genomes Project
  • Messages to Health Professionals and Genomics England
• People's Profiles
  • People who took part
• Resources and Information
• Credits