So how long does it take for, sort of when he, after he has had the flu for him to, for the symptoms to settle down, for him to become sort of

Back to normal?

Back to normal again.

I’d say normally a week to two weeks the whole thing lasts and then we get back to our normal routine. I think they normally last about a week in terms of sickness and things like that. After that it’s a case of him gradually eating a little bit more, him wanting to drink a little bit more, him wanting to do things and being his happy self again. Stop being as grizzly as he was, that kind of thing. But I’d say two weeks for him to fully recover, get back to his old self and be laughing and running around like a crazy fool.

But any complication from the flu?

No, just probably took her longer to get over things than sort of one of the healthy children. You’d notice more. She’d sleep a lot longer. Whereas if the others ever got it, they’d be up and running around within a couple of days, whereas Amy, it might take a week or something like that.

And how long it took from the moment that she was taken into hospital and she went through all that and then you brought him, you brought her home, with kind of many, load of puffs every four hours to go back to, let’s say, normal.

Probably about a week. So, obviously they gradually, even though she should be on high amount of puffs with stretches, or it would be six hourly until eventually she was down to hardly using it. But I suppose from start to finish, on average it was about a week.

So on a typical kind of flu episode how long does it take for her to get sort of better, up and running again,

In comparison with other children that don’t have it she does take a lot longer and she seems to be, she seems to be a little lot, much worse affected as well, you know. She seems to take longer to recover and be worse and then have periods of time when she might be ok and appear to bounce back and they’ll sort of, like a typical flu up and down, a bit up and down where she’ll be quite flat for a lot of the time. Yeah.

So roughly one week, two weeks?

I’d say at least two weeks really because I think unwell for a week, a full week but then afterwards really under the weather still. You know, very, very low on energy, still coughing a lot, struggling with appetite, you know, that sort of thing. Just taking a long time to bounce back really.

Six, six days where she was definitely feverish.

And just –

And, and then the other symptoms of increasing and decreasing severity at either side of that-

Okay.

-taking it up to about two weeks.

She – yeah, as I say, she’s generally speaking very healthy, very strong. So we, we haven’t seen really ear infections or long term infections following on from the flu. It is the illness, and then she’s a bit convalescent with – quite grumpy and not herself for a while. Once she rests, she tends to bounce back within two weeks afterwards, with rest and care.

Cos I compare him to his younger sibling and see, cos they often get ill together. So, I find obviously my younger son who has not got a chronic illness, he recovers very quickly. Whereas my other son is probably still unwell while the other one is sick. So, and also what I’ve found with my son, my eldest is that he can appear to have recovered, but then can quickly fall down with another virus. So his immune system takes a long time to get back on peak.

So roughly how long do you think before he’s sort of kind of his, his normal self.

Probably two weeks.

Two weeks.

Yeah, yeah.

You think those two weeks-

Probably a week of full blown, blown flu, sorry. Three days beforehand and then the week, the week after I would see, oh, he looks better to, to you or I, but really his insulin needs have changed dramatically and I still have to be really, really vigilant about yeah.

Sorry, it is sort of kind of more than two weeks.

There’s like a trail, yeah. And I mean, there has been times he’s been like a week off with a, with a bug. I’ve sent him to school for a week, but because that week, I didn’t manage it properly, he was unwell the following week, so it lasted a whole, nearly a whole month. So, yeah, that is, it can last quite a long time.

And you can see that because of his insulin needs.

Yeah, suffering lots of hypos. Looking drained because he has no energy from the hypos. Yeah, it’s quite hard to get back on track.

And then when you’re sort of sent home from the A&E do you, do they give you instructions of how to manage him at home and what to do?

Yeah, the last time he actually got it which I can’t remember when it was but it was last year anyway, we came home with an inhaler and I think it was five days, that was the longest time he’s ever had to do it but five days on an inhaler and we came home and he was having to have ten puffs every four hours which was a lot, cos it’s normally just two puffs with inhalers.

That’s right, yeah.

But because his breathing had got so bad, and they did say to me yeah to kind of, and then I had to wean him off of it over like a five day period and I thought, Oh that was really bad kind of episode.

Yeah

But

Yeah.

Yeah after that he was fine I think maybe for about two weeks he was kind of short of breath sometimes but yeah since then he’s been fine.

So how was the recovery process?

Wasn’t too bad, he sort of, he did, I think, was nine days IV piptaz, because his CR, the, they started him on, to my knowledge, they started on the antibiotics because of the changes to his like chest x-ray in A&E, so they ordered them in then. But his CRP never went above 41, so I wasn’t really happy with him having the antibiotics because I think, I know it raised, but Jack’s had a CRP of over 200 before today so I would prefer to keep sort of good antibiotics for when he really needs them. And I felt at that time he didn’t really need a strong antibiotic which is piptaz and like, probably one of the best to give. And the Tamiflu I think was seven days, I think. And then after they finished [child noises] it was just, I think, a case of getting his lungs clear because a couple of times we thought, Oh, we’ve got him ready for HDU, and then they’d listen and they’re like, No, he’s a bit quiet again on the other side. So he was very positional as well and afterwards with his secretions if you like so he was on, you know, the big Hill-Rom bed that rotates you to try and keep, because he, he, like, they’d say, We’re quiet on the right, so we’ll work on the right. And then a couple of days later he’d collapse on the left. So it was trying to find that balance of getting him and then, be, weaning him down to see if PAP ASB and, and he’d collapse whole lung and have to go back up to Bipap and then I think, he had the shingles as well which I think set him back a little bit. And then after about three weeks I think he just thought, You know what, I’ve had enough of being sick.

I think or he just must have felt great, because, it’s my understand, I mean, I’ve never had the flu that you feel really lethargic and everything and I don’t know if it was because he was on the Bipap so much that because that’s done all his breathing for him he’s been able to sort of recuperate a bit quicker than what he normally would. I mean, he was still at home in more, in he’s still in more oxygen overnight than what he has been previous slowly weaning that down. And his heart rate as well is considerably lower than what it was before the flu. So I don’t know if that was, if that’s like an ongoing thing or just a complication or, and his liver is still abnormal. So he’s not totally over all the effects that it caused but I think the initial thing. He see, he was a lot better.