Kwame is a surviving twin born extremely early at 23 weeks. He has a chronic lung disease which makes him more susceptible to chest infections and respiratory distress. Kwame has been treated with a lot of antibiotics and his mum also uses holistic therapies.
Kwame is one of twin boys, born extremely premature at 23 weeks. Kwame and his brother were critically ill after birth and very sadly his brother passed away at the age of 3 weeks. Kwame spent 6 months in hospital during which he had heart surgery, a hernia operation, suffered from RSV (Respiratory Syncytial Virus), septicemia and liver problems. At home he needed to have 24-hour-oxygen until he was 18 months. Because Kwame was born at such early weeks, the doctors were unable to predict if he would have later complications. Initially he had problems with his vision, swallowing and he was having intense physiotherapy to help with mobility. Over time he has improved greatly, is no longer on any medication and been discharged from all the clinics. He still has chronic lung disease which makes him more susceptible to chest infections. He is also diagnosed with mild global delay and working memory problems.
Hyacinth was told that because Kwame was so premature, catching a cold could make him very ill. He has had to be seen at the hospital with a bad cold at least once every winter and has suffered from pneumonia. Typically, Kwame would develop a sneeze and temperature. If after 2-3 days he is not any better but gradually worse, Hyacinth knows he’s developing a more serious infection. Kwame can develop respiratory distress quickly. That is why Hyacinth always takes him straight to the A&E if he becomes lethargic and starts to struggle with breathing. Although not their local hospital, Hyacinth tends to take him in the taxi back to the large teaching hospital where he was born because they know him and have all his medical notes. In hospital Kwame is usually given oxygen and a nebulizer to stabilize his breathing.
Over time, Kwame has been treated with a lot of antibiotics. Ideally, Hyacinth would want to avoid Kwame being on lots of medication and has decided not to give him the flu jab. It was a difficult decision but Hyacinth says she wanted his body to have a break. Hyacinth is trained in holistic therapy. She is able to help Kwame with massage and burning oils to sooth him if he’s ill. Hyacinth has done a lot of research into prematurity and medicine. She reads medical papers and online information and is not afraid to question professionals decisions. Kwame now aged 8, is a keen St John’s Ambulance Badger, knows how to do First Aid and wants to become a paramedic.