Screening for sickle cell and beta thalassaemia
In this section you can find out about the experience of antenatal and newborn screening for sickle cell, beta thalassaemia and other haemoglobin variants, by listening to people share their personal stories on film. Our researchers travelled all around the UK to talk to 39 people in their own homes. Find out what people said about issues such as partner screening, telling people you’re a carrier, living with sickle cell and sources of support. We hope you find the information helpful and reassuring.
Interviews in other languages, Urdu: Interview 22, 30, Mirpuri: Interview 21, 24, Sylheti: Interview 16, Français: Interview 14, 18, 20, Português: Interview 25.
This section is based on research by the Health Experiences Research Group.
Research Copyright 2019 University of Oxford All rights reserved
Hulme University Fund, Oxford
NHS National Screening Programme for Sickle Cell and Thalassaemia
Programme Director Dr Allison Streetly
Publication date: October 2006
Last updated: December 2018.
Review date: December 2020.