Here, you can find any of the interviews on this site.
Her 1st pregnancy' Triple test at 16 weeks indicated baby was at high risk of having Edwards syndrome. Amniocentesis confirmed Edwards syndrome. Pregnancy ended by induction at 19 weeks. She and her husband agreed to post mortem. She has since had another two babies.
Pregnancy ended in 1999. No of children at interview’ 2 + [1]. Ages of other children’ 4, 1. Occupations Mother – Engineering procurement buyer. Father – Project manager. Marital status...
Discovered she was a beta thalassaemia carrier during her first pregnancy. Her husband was tested and is not a carrier. Their first daughter is a carrier. Video and audio clips read by an actor recorded in Urdu.
Housewife, married with two children aged 3 and 5 months. Ethnic background/nationality: Pakistani.
First baby diagnosed with sickle cell anaemia after birth. As a Christian, the mother chose not to have prenatal diagnosis in her next pregnancy. The second baby is a carrier. Her third baby is not a carrier. Video and audio clips in French.
Full-time mother, with three children aged 9, 8 and 3. Partner is a driver. Ethnic background/nationality: French African.
Mother who is a beta thalassaemia carrier, and her husband is not a carrier. They have been told in several pregnancies they need to repeat the test, which has caused anxiety. Video and audio clips played by an actor.
Community development worker, married to warehouse operative, with two children aged 5 and 1. Ethnic background/nationality: Pakistani.
Father knew he was a beta thalassaemia carrier. Mother discovered in pregnancy she was also a carrier. Couple had CVS and were told the baby had beta thalassaemia major. Since birth the baby has been well and has not needed transfusions as expected.
Married couple, with on child aged 14 months. Mother aged 36, father 35. Both are solicitors. Ethnic background/nationality: White British.
Mother discovered she was a sickle cell carrier in her first pregnancy. Father is not a carrier. He later changed his name and was recalled for screening when she was pregnant again. Audio clips in French.
Cleaning company supervisor and social work student, married with two children aged 5 and 3. Ethnic background/nationality: Black African (Congo).
Routine pregnancy screening showed she is a carrier of beta thalassaemia, and that he carries haemoglobin E. They had amniocentesis, and the baby was unaffected. They would have had a termination if the baby was affected. Interview mainly in English with some brief discussion in Vietnamese.
Married couple, first pregnancy. Mother aged 27, father 32. Father is an accountant. Ethnic background/nationality: Vietnamese.
Female partner discovered she was HIV positive when she came to the UK. When she changed HIV consultant, a routine blood test showed she was a sickle cell carrier. Male partner has not yet had carrier screening.
Couple with no children, aged 35 (female) and 57 (male). Female partner is not working, male partner is a carer. Ethnic background/nationality: Female- Black African, Male- White British.
Mother knew she was a sickle cell carrier; partner had screening late in pregnancy. She was shocked when the baby was born with sickle cell anaemia. Although the baby is well, she was so afraid of having another affected baby she ended her next pregnancy.
Chef, single, one child aged 2. Ethnic background/nationality: Black African.
Mother discovered from antenatal screening she was a carrier of haemoglobin C. The baby's father was no longer in the UK to be screened. A newborn test showed the baby had SC disorder.
Full-time mother, single, one child aged seven months. Ethnic background/nationality: Black African.
