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Interview 33

After diagnosis she was put on two insulin injections a day. But now she is on four injections a day; three injections of NovoRapid one with each meal and one of glargine at bedtime. She started to do her injections from the very beginning. She uses an insulin pen and the small size needle. Her diabetes is well-controlled; her last HbA1C result was 6.8. She attributes her good control to a well-balance diet which doesn't change significantly except when eating out; the right amount of insulin and checking her blood sugar levels everyday. She has never had a bad or severe hypo. Her blood sugars usually range between 3.5 and 10 but she finds the blood sugar tests a bit of a pain! She thinks that an important part of having good control is to understand why blood sugars go high or low and knowing what to do about it.

  • Background

    Full-time student preparing her final A level exams. She is going to university next September to study psychology. Lives with parents and an older sister. Says that diabetes has never...

  • Age at interview 18
  • Sex/Gender Female
  • Interview 32

    Since diagnosis and until she was sixteen years old she was on a two daily injections of insulin. Until her early teens she had well-control diabetes, but then it began to slip. She found her insulin regimen oppressive and limiting so when it was changed to short-acting and long-acting analogue insulin she had a sense of freedom that she has never experienced before in relation to food and mealtimes. The problem was that around the same time she started to be concerned about her weight and decided to go on a diet. That was the start of her eating disorder that was to last for several years. She realised that she needed help and talked to her GP whom she trusted. Eventually she was able to find a psychologist that worked with her and helped her overcome her eating disorder. Unfortunately she developed diabetes-related complications which affected her eyesight. She was registered blind at the age of 23. She currently uses an insulin pump and her control is very good.

  • Background

    Performing artist. Shares a house with a friend. Her advice to other young people who are not doing their insulin injections is to find the courage and to seek help...

  • Age at interview 27
  • Sex/Gender Female
  • Interview 31

    After diagnosis she was put on Humulin S insulin and she had to inject two times a day at mealtimes and also had to have about four snacks a day. She found it annoying that she had to eat even when she was not hungry. Her insulin injections were increased to four a day to try and improve her blood sugar levels. By that time she was playing golf at a high level and found it difficult to maintain good control. She remembers that her blood sugar levels could go as high as 25 and her lowest were around 12. Physically she felt tired and unable to concentrate plus it was difficult to inject in the middle of a tournament. She and her mum started to look for an alternative to injections and looked on the internet and found an American website that provided information on Insulin Pumps. Her GP didn't know much about Insulin Pumps and she was referred to a diabetes care team in London. On assessment she says that her control is much better since she is on the pump. On average her blood sugar levels are between 7 or 8 and never higher than 13. And her HbA1C's have come down from 12 to 8.

  • Background

    Full-time student; lives at home with her family. She took up golf at the age of 11. She won a golf scholarship and is travelling to the USA in August.

  • Age at interview 18
  • Sex/Gender Female
  • Interview 30

    She has blurred vision as one of her main symptoms prior to diagnosis. Her driving instructor asked her to have her eyes tested. She was told that she was long-sighted but, her symptoms which also included tiredness and thirst didn't improved. Her mother is a nurse and decided to test her urine and found she had ketones. She stayed a few days in hospital and at first, found it difficult to inject insulin. Testing her blood sugar level was also difficult but found it easier than injecting insulin. She remembers feeling scared of doing her insulin injections and stayed in hospital a bit longer for that reason. Found the nurses really supportive and friendly. Initially she was put on NovoRapid and Insulatard. She injected Insulatard in the evening but found that she had frequent hypos in the morning. Her Insulatard was then changed to Lantus. Once at university her HbA1C got gradually worse and her mum and a nurse talked to her about having an Insulin Pump. She decided to try one and has used a pump since last Christmas. Since then she has noticed an improvement in her blood sugar levels and a reduction in the number of hypos. She is due to have an HbA1C soon. Her mum bought the Insulin Pump.

  • Background

    Second year university student; has a boyfriend; lives in university halls. Has done voluntary work for Diabetes UK. Says that you musn’t allow diabetes to take control of your life.

  • Age at interview 19
  • Sex/Gender Female
  • Interview 29

    She remembers that after diagnosis she left the hospital with a bag 'full of medicines. Initially she was put on two injections of Mixtard 30 a day. To start with she found managing her diabetes easy. She learned to inject and was monitoring her blood sugars regularly. Around the age of 16 she began to develop an eating disorder that took sometime before it was properly diagnosed. Initially, the care team treated her behaviour of skipping insulin injections as a 'rebellious teenage phase. It was nearly two years before she was referred to a psychiatrist. Recovery has been a gradual, bumpy process with lapses on the way. In her experience the support of her family and close friends has been invaluable.

  • Background

    First year university student. During term time lives in student accommodation but often at weekends goes back home to see her parents and brother. She is enjoying her student life...

  • Age at interview 19
  • Sex/Gender Female
  • Interview 28

    He has been doing his insulin injections since he was eight years old. He started to self-manage his diabetes when he was 15 years old. About seven years ago he changed his insulin from Humulin S to glargine and Humalog. The main reason for changing his insulin regime was the lack of flexibility regarding eating times. He admits that he no longer does glucose tests except when doing things differently such as changing insulin regimen, exercising more, changing diet, etc. A few years ago he was diagnosed by a private consultant as being clinically obese. The consultant put him on a diet and on Metformin tablets. Since then he has loss a total of five stones. Says that his obesity was the product of a bad diet and lack of exercise rather than because he is diabetic.

  • Background

    Works full-time as a customer service adviser; lives at home. Says that the children’s diabetic clinic was very good but his impression of the adult team is that basically they...

  • Age at interview 23
  • Sex/Gender Male
  • Interview 27

    She had no symptoms and her diabetes was diagnosed when she registered with a new doctor in a new town. The GP phoned her at home and said that they have found sugar in her urine. At the GP surgery she was told that the results were inconclusive because she neither fitted type 1 or type 2 diabetes profiles. She was advised to go and buy a glucometer to check her blood sugar levels and to avoid eating sugar. She waited for about three months before she saw the diabetes care team at the hospital. After further tests they concluded that she has type 1 diabetes but what they call LADA (Latent Auto Immune Diabetes in Adulthood) also known as Type 1.5. At first the consultant put her on tablets like for those with type 2 diabetes but after a month she had to start on insulin injections. She is on NovoMix twice a day.

  • Background

    Journalist; shares a house with other young people. Says that when first diagnosed she had no idea what diabetes was all about and that she had loads of questions but...

  • Age at interview 25
  • Sex/Gender Female
  • Interview 26

    He has been on several insulin regimens: Humalog, ActRapid, Insulatard and NovoRapid. Around the age of fourteen, while on Insulatard he started to experience problems with controlling his diabetes. He began to have high blood sugar levels and felt sad and frustrated about it and was compensating by eating chocolate. Six months ago he went to see a new consultant who decided to change his insulin regimen. The consultant explained that Insulatard was not the best choice for him because it is for

  • Background

    Lives with parents and siblings; he is a first year A level student. Says that when he was experiencing problems with controlling his diabetes he talked to his father and...

  • Age at interview 16
  • Sex/Gender Male
  • Interview 25

    After being diagnosed with diabetes she was put on Humalog Mix 25 twice a day. She had one injection with her breakfast and another at tea time. She used Humalog for about four years but because her control was a bit unstable decided to follow the advice of her diabetes care team and changed to Lantus but remained using Humalog mix. She was also diagnosed with Coeliac disease (gluten intolerance) and she finds that her new four injections a day regimen allows her to control her carbohydrate intake better. Along with Coeliac disease she was found to have slight damage to her kidneys. She is currently taking Enalapril tablets. She has applied for an Insulin Pump and sees it as the next step up from being able to control her diabetes even better. Having tight control is very important to her and she tends to test her blood sugar levels about 10 times a day.

  • Background

    A level student and also works part-time as a life guard at her local swimming pool. She plans to go to university after her exams and would like more information...

  • Age at interview 17
  • Sex/Gender Female
  • Interview 24

    When he was first diagnosed he was on Novomix 30 in the morning and Mixtard 20 in the evening. Initially he hated injections but has become used to the routine of doing them. He has found that he is less likely to forget his insulin injections if he does them before a meal rather than after. Doctors changed his insulin regime to Lantus and NovoRapid but he did not like the new regime and asked to be moved back to the original one. He prefers a daily routine of set mealtimes and snacks and two injections rather than having to inject every time he eats. He stopped smoking soon after he was diagnosed.

  • Background

    Full-time student; lives with parents and three siblings; has a girlfriend. Says that his parents do “nag” him but he knows it is for his own good. All his friends...

  • Age at interview 17
  • Sex/Gender Male