Profiles

Here, you can find any of the interviews on this site.



Interview 07

Discovered following a check for a kidney problem.

  • Background

    Discovered following a check for a kidney problem.

  • Age at interview 55
  • Sex/Gender Male

    • Interview 05

    Discovered following pregnancy.

  • Background

    Discovered following pregnancy.

  • Age at interview 71
  • Sex/Gender Female

    • Interview 01

    Discovered following a HRT check.

  • Background

    Discovered following a HRT check.

  • Age at interview 52
  • Sex/Gender Female

    • Una & Bill - Interview 49

    Una's husband Bill first noticed symptoms at the end of 2005 and was diagnosed aged 63. A ventilator greatly improved his energy levels for nearly a year. He had a PEG fitted but does not yet use it for feeding.

  • Background

    Una is a retired former NHS Patient Involvement Facilitator, married with 3 adult children (1 died recently). Ethnic background/nationality: White Irish.

  • Age at interview 62
  • Sex/Gender Female

    • Ann & Barry - Interview 48

    Ann's husband Barry was diagnosed with MND about 10 years ago (1997) at the age of 49, after two years of symptoms and tests. (Since identified as primary lateral sclerosis - PLS).

  • Background

    Ann is a retired hospital administration clerk, married with 2 adult sons. Ethnic background/nationality: White British.

  • Age at interview 54
  • Sex/Gender Female

    • Bev - Interview 47

    Bev's mother died about a year after developing speech and swallowing difficulties and being diagnosed with bulbar onset MND, aged 72. Her family were unhappy with many aspects of the care received.

  • Background

    Bev is a community and education consultant, living with partner. Ethnic background/nationality: White British.

  • Age at interview 40
  • Sex/Gender Female

    • Peter & Olivia - Interview 46

    Peter's daughter Olivia (aged 22) died within a year of developing pain and weakness in her leg, in late 2006. Diagnosis of MND remained uncertain, as aspects of her condition were unusual.

  • Background

    Peter is a consultant (heritage projects), married, father of Olivia and one other grown-up daughter. Ethnic background/nationality: White British.

  • Age at interview 62
  • Sex/Gender Male

    • Roger & Luise - Interview 45

    Roger's wife Luise was diagnosed in 2004 aged 59, after a year of weakness in her fingers and leg. Roger and his sons cared for Luise at home until her death in 2006.

  • Background

    Roger retired from graphic reproduction for the printing trade, widowed, with 2 adult sons. Ethnic background/nationality: White British.

  • Age at interview 67
  • Sex/Gender Male

    • Peter - Interview 38

    Peter was diagnosed three years ago (2004). Symptoms started in his arms and hands, and progressed to his legs. He now uses a wheelchair full-time.

  • Background

    Peter is a retired civil servant, married. Ethnic background/nationality: White British (Polish origin).

  • Age at interview 56
  • Sex/Gender Male

    • Sandy - Interview 36

    Sandy was diagnosed 5 years ago (2002) after noticing weakness in one arm. His arms have been worst affected, and now his speech and neck muscles are deteriorating, but he can still walk well.

  • Background

    Sandy is a retired Royal Navy sub-mariner, married with 2 adult children. Ethnic background/nationality: White British.

  • Age at interview 59
  • Sex/Gender Male