Profiles

Here, you can find any of the interviews on this site.



Dick - Interview 42

Dick was married to Di, who was diagnosed with MND two and a half years ago (2004). She died 6 months ago, aged 64.

  • Background

    Dick is a local government officer, widowed, with 2 adult step-children. Ethnic background/nationality: White British.

  • Age at interview 55
  • Sex/Gender Male
  • Harry - Interview 43

    Harry's wife was diagnosed with bulbar onset MND two and a half years ago. She is now unable to speak. She finds swallowing very difficult, and has a PEG fitted.

  • Background

    Harry is retired, married with 3 adult children. Ethnic background/nationality: White British.

  • Age at interview 73
  • Sex/Gender Male
  • Tess - Interview 44

    Tess met her partner, who had already been diagnosed with MND, when volunteering at a sailing club for disabled people. She now lives with him and is his main carer. (See Marcelin, MND37)

  • Background

    Tess is an office worker, living with partner, 1 adult daughter. Ethnic background/nationality: White British.

  • Age at interview 52
  • Sex/Gender Female
  • Maryse - Interview 06

    Maryse was diagnosed March 2005. She was told she had 2-3 years to live. Within months she could no longer live independently and moved into a nursing home. Her speech deteriorated rapidly.

  • Background

    Maryse is a retired senior university lecturer, widowed with 2 adult children. Ethnic background/nationality: French.

  • Age at interview 74
  • Sex/Gender Female
  • Paul - Interview 09

    Paul's diagnosis of progressive muscular atrophy was confirmed 2 years ago (2004) after several years of leg pain and weakness. Now unable to walk and he has limited arm movement. Uses a ventilator, but his speech is not affected. He worked until 6 months ago.

  • Background

    Paul is a retired university IT specialist, married with 2 children, aged 17 and 14. Ethnic background/nationality: White British.

  • Age at interview 58
  • Sex/Gender Male
  • Mary - Interview 04

    Mary is the wife of man diagnosed with MND a year before interview (2003). (Couple also interviewed together - see Jack's story MND03).

  • Background

    Mary is a pharmacy assistant, married with 3 adult children. Ethnic background/nationality: White British.

  • Age at interview 59
  • Sex/Gender Female
  • Penny - Interview 11

    Penny was diagnosed three years ago (2003) with ALS, after having arm weakness, pains and coughing fits for three years. The condition has progressed quite slowly so far.

  • Background

    Penny is a retired primary school headteacher, married with 2 adult children. Ethnic background/nationality: White British.

  • Age at interview 59
  • Sex/Gender Female
  • Judith - Interview 12

    Judith was diagnosed with Progressive Muscular Atrophy form of MND two years ago, after consulting two neurologists. Now she uses a wheelchair and mobility scooter.

  • Background

    Judith is a retired English teacher, married with 2 adult children. Ethnic background/nationality: White British.

  • Age at interview 58
  • Sex/Gender Female
  • Cordelia - Interview 13

    Cordelia was diagnosed a year ago (2005) with MND after investigations for other conditions including spinal muscular atrophy. She now has considerable muscle weakness.

  • Background

    Cordelia is a married housewife with 6 adult children. Ethnic background/nationality: White British.

  • Age at interview 76
  • Sex/Gender Female
  • Ken - Interview 15

    Ken was diagnosed with amyotrophic lateral sclerosis (ALS) form of MND 5 years ago (2002). His arm muscles were affected first, followed by his leg muscles. His speech is not affected and his condition has progressed more slowly than he originally expected.

  • Background

    Ken is a retired teacher, married with 3 adult children. Ethnic background/nationality: White British.

  • Age at interview 60
  • Sex/Gender Male