Profiles

Here, you can find any of the interviews on this site.



Graham

Graham has a type of systemic vasculitis called giant cell arteritis (GCA). Treatment came too late to avoid permanent sight loss in his right eye, which he describes as life changing.

  • Background

    Graham is a retired chemical engineer. He lives with his wife and they have two grown-up children. Ethnic background: White British.

  • Age at interview 81
  • Sex/Gender Male
  • Brenda

    Brenda has a type of systemic vasculitis called polyarteritis nodosa (PAN), which is under control on medication. She would like to be sure that, if she has a relapse, it will be treated quickly and appropriately.

  • Background

    Brenda is a retired deputy head teacher. She is married with two grown-up children. Ethnic background: White Northern Irish.

  • Age at interview 75
  • Sex/Gender Female
  • Marie

    Marie has been treated for giant cell arteritis (GCA), a type of systemic vasculitis. She also has polymyalgia rheumatica (PMR), fibromyalgia, and knee pain. She struggles with fatigue and is finding it hard to reduce her use of steroids.

  • Background

    Marie lost her job as a result of ill health. She is single and has moved back in with her elderly mum. Marie is passionate about the benefits of singing...

  • Age at interview 57
  • Sex/Gender Female
  • Diane

    When Diane needed emergency heart surgery, it was unclear what had caused the problem. She now knows she has Takayasu arteritis, a type of systemic vasculitis. Diane's care is provided both in Northern Ireland and by a vasculitis specialist in England.

  • Background

    Diane works part-time. She lives with her husband and their two dogs. Ethnic background: White Northern Irish.

  • Age at interview 39
  • Sex/Gender Female
  • Richard

    Richard has giant cell arteritis (GCA), a type of systemic vasculitis. He already had a relatively common condition, polymyalgia rheumatica (PMR), and was aware they can be linked. This meant he recognised symptoms of GCA and sought medical help quickly.

  • Background

    Richard is a retired chartered accountant. He and his wife have two grown-up children. Ethnic background: White British.

  • Age at interview 64
  • Sex/Gender Male
  • Charlie

    Charlie has granulomatosis with polyangiitis (GPA), an ANCA associated vasculitis affecting his lungs, ears, nose, windpipe and pituitary gland. He breathes with the aid of a tracheostomy tube in his neck, sealing it with his finger when he wants to talk.

  • Background

    Charlie is a statistician for large-scale research projects including clinical trials. He lives with his wife and their baby daughter. Ethnic background: White British.

  • Age at interview 28
  • Sex/Gender Male
  • Dean

    Dean has Hughes-Stovin syndrome, a very rare type of systemic vasculitis. It has mainly affected his lungs, and he has to take life at a slower pace than before.

  • Background

    Dean had worked in the retail sector since leaving school but has been unable to return due to ill-health. He lives with his wife and son. Ethnic background: White British.

  • Age at interview 47
  • Sex/Gender Male
  • Claudia

    Claudia has a type of systemic vasculitis called anti-glomerular basement membrane (anti-GBM) disease (also known as Goodpasture's disease) with ANCA (anti-neutrophil cytoplasm antibodies). She looks forward to her continued recovery.

  • Background

    Claudia is on a phased return to full-time work with the support of occupational health. She lives with her husband. Ethnic background: White Romanian.

  • Age at interview 39
  • Sex/Gender Female
  • Nicky

    Nicky has Behçet's disease, a type of systemic vasculitis with symptoms including ulcers, swelling, rashes and fatigue. Nicky is grateful to the dentist who recognised that she needed specialist investigation and treatment.

  • Background

    After a career in the police and Special Branch, Nicky is self-employed running a transcription company. She is separated. Ethnic background: White British.

  • Age at interview 57
  • Sex/Gender Female
  • Jane

    Jane has ANCA associated vasculitis with stage 4 kidney disease and may need a kidney transplant. Her vasculitis was discovered after she had two cardiac arrests and was resuscitated by a stranger. It was very important to her to meet and thank him.

  • Background

    Jane lives with her partner. She is hoping to return to her work as a medical secretary in a few months; time. Ethnic background: White English.

  • Age at interview 58
  • Sex/Gender Female