Here, you can find any of the interviews on this site.
Ian was diagnosed with motor neurone disease just over two years ago, in 2008. He has taken part in several research studies, including a biobank study which aims to improve the diagnosis and understanding of MND.
Ian is an insurance consultant. He is married with two children aged 21 and 17. Ethnic background: White English
Roland has a rare form of motor neurone disease (MND) called progressive muscular atrophy. He is part of a study using blood samples, scans and other tests to improve the diagnosis and understanding of MND. He has also agreed to donate his brain to a brain bank.
Roland is a retired computer consultant. He is married with two grown-up children. Ethnic background: White British
Gareth has taken part as a healthy volunteer in two studies run by a diabetes research group, including a recent one which involved giving him adrenaline and taking fat biopsies. He declined to take part in one which involved being injected with insulin.
Gareth is an engineering manager. He is married with two teenage children. Ethnic background: White British
Elaine has taken part as a healthy volunteer in several diabetes and metabolism research studies, where she has given blood and tissue samples. Healthy volunteers help researchers understand how influences such as diet and weight interact with our genes.
Elaine works as a healthcare assistant. She is married with two sons aged 17 and 22. Ethnic background: White British
Richard was asked to take part in a biobanking study and decided not to. He has taken part in other medical research in the past.
Richard is an NHS manager. He is married with two children aged 14 and 12. Ethnic background: White British
Jade was part of a twin birth cohort study. She stopped taking part in the study at age 12 but cannot remember why or how this was communicated to the research team. She is considering rejoining the study.
Jade is a student. Ethnic background: White English
Lucy was a part of a longitudinal medical study. As part of involvement, she had pictures of her moles and freckles taken. At first she found this interesting, but as she got older it caused concern about whether they could be cancerous.
Lucy is in relationship and has one child. Ethnic background: White British
John has been part of a cohort study for ten years. Through the study, he took part in some research about using MRIs and, through this, he learnt more about his brain health.
John is married and has one child. He is a retired science filmmaker. Ethnic background: White British.
Gill was invited to join a women's health cohort study after taking part in a short study about ovarian cancer. Her participation involves answering questionnaires. Her motivation for taking part is to benefit other people.
Gill is married and has three children. She is a retired couples psychotherapist. Ethnic background: White English
Barbara has been part of a birth cohort study for over 70 years which started when her mother was pregnant. She feels privileged to have taken part and has always found her involvement interesting. She feels part of a club.
Barbara is widowed and a retired media researcher. Ethnic background: White British
