Here, you can find any of the interviews on this site.
Bev's mother died about a year after developing speech and swallowing difficulties and being diagnosed with bulbar onset MND, aged 72. Her family were unhappy with many aspects of the care received.
Bev is a community and education consultant, living with partner. Ethnic background/nationality: White British.
Ann's husband Barry was diagnosed with MND about 10 years ago (1997) at the age of 49, after two years of symptoms and tests. (Since identified as primary lateral sclerosis - PLS).
Ann is a retired hospital administration clerk, married with 2 adult sons. Ethnic background/nationality: White British.
Una's husband Bill first noticed symptoms at the end of 2005 and was diagnosed aged 63. A ventilator greatly improved his energy levels for nearly a year. He had a PEG fitted but does not yet use it for feeding.
Una is a retired former NHS Patient Involvement Facilitator, married with 3 adult children (1 died recently). Ethnic background/nationality: White Irish.
Kim was diagnosed with MND (ALS) about a year ago (2005). Now unable to walk she needs help with most daily tasks, but is still working as an occupational therapist and able to drive. Her speech is not affected.
Kim is an occupational therapist, married with 2 children, aged 12 and 10. Ethnic background/nationality: White British.
Stuart first noticed symptoms (legs shaking) almost 20 years ago. MND diagnosed 9 years ago (1997), after years of tests and investigations. Now uses a wheelchair.
Stuart is a retired electrician, married with 3 grown-up children. Ethnic background/nationality: White British.
Liz was diagnosed with inherited form of MND in 2004. (Her father and uncle both had MND). Weakness in her legs progressed to her arms; she is now in a wheelchair. Her speech is unaffected.
Liz is a former hydrologist (environmental scientist), married. Ethnic background/nationality: White British.
Martin was diagnosed about a year ago in 2006, after a year of weakness in his fingers and hands. Movement in his arms is now very limited, but his legs and speech are not affected.
Martin is an unemployed former building worker, single. Ethnic background/nationality: White British.
Roger was married to Teresa, who was diagnosed with bulbar onset MND. She died a year ago, aged 64, less than six months after the diagnosis.
Roger is a mini-bus driver, widowed, with 5 adult children. Ethnic background/nationality: White British.
Ken was diagnosed with rare inherited (familial) form of MND less than a year ago (2006). He has limited arm and leg movement, has a PEG and uses a Lightwriter to speak, but carried on working until a month ago. Interviewed through his wife Chris.
Ken (aged 59) and Chris (aged 60) are a married couple with 3 adult children. Ken retired as a soft furnishing workroom manager. Ethnic background/nationality: White British.
Marcelin was diagnosed over three years ago (in 2003), after several years of weakness in his arms, and later his legs. He now uses a wheelchair. His speech is unaffected. He continues to work full-time. (Partner Tess also interviewed, MND44).
Marcelin is a research and technology systems engineer, divorced, with 4 children aged 27, 20, 16 and 7. Ethnic background/nationality: African.
