Here, you can find any of the interviews on this site.
Her husband first noticed symptoms at the end of 2005 and was diagnosed with Motor Neurone Disease. A ventilator greatly improved his energy levels for nearly a year. He had a PEG fitted but does not yet use it for feeding.
Una is a retired former NHS patient involvement facilitator, married with three adult children (one died recently). Ethnic background: White Irish
Peter's daughter Olivia died within a year of developing pain and weakness in her leg, in late 2006. Diagnosis of motor neurone disease remained uncertain, as aspects of her condition were unusual.
Peter is a consultant (heritage projects), married, father of Olivia and one other adult daughter. Ethnic background: White British
Wife Luise diagnosed with Motor Neurone Disease in 2004, after a year of weakness in her fingers and leg. Roger and his sons cared for Luise at home until her death in 2006.
Roger is retired from graphic reproduction for the printing trade. He is a widower, with two adult sons. Ethnic background: White British
Dick's wife Di was diagnosed with motor neurone disease in 2004. His wife had died 6 months before his interview, aged 64.
Dick is a local government officer, widowed, with two adult stepchildren. Ethnic background: White British
Roger's wife Teresa was diagnosed with bulbar onset Motor Neurone Disease. She died a year ago, aged 64, less than six months after the diagnosis.
Roger is a mini-bus driver, widowed, with five adult children. Ethnic background: White British
Last August it was discovered that Keith's wife Pat had a terminal brain tumour. Pat spent some time in a hospice and then returned home, where Keith cared for her. Pat died in November with her family around her.
Keith is a widower with three adult children. He is a retired director of Human Resources. Ethnic background: White British
Jordan delayed going to see his GP after finding a swelling on the end of his penis. When cancer was eventually diagnosed he underwent a partial penectomy with reconstructive surgery. He is currently waiting for his first post-operative check-up.
Jordan is a married white male with two children, both in their twenties. Jordan works as an internet trader in a small web sales company.
After being diagnosed with penile cancer in 2010, John underwent a partial penectomy with reconstruction and bilateral inguinal lymphadenectomy. He then had radiotherapy to remove any remaining cancerous cells. He now suffers from prostate cancer, which is being treated with hormone therapy.
John is a British widowed male. He has one child in his 50s. Now retired, John used to work as a Teacher.
Jim was first tested for sexually transmitted infections when he found a penile lump. A subsequent biopsy confirmed a diagnosis of cancer in early 2010. He underwent a partial penectomy and has been reviewed every three to four months.
Jim is a white male who is a self-employed accountant and lives with his partner. He has two children. His son has passed away and his daughter is training to...
Two years after undergoing a partial circumcision, Frank found a small lump under the remainder, this lump was then diagnosed as cancerous tissue. Frank was referred to a Regional Centre where he underwent a full circumcision and penile biopsy. He then required a bi-lateral inguinal lymphadenectomy.
Frank is a white, widowed male. He has one grown up child. Now retired Frank used to work as a civil servant. Frank currently lives on his own.
