Profiles

Here, you can find any of the interviews on this site.



David - Interview 20

David was diagnosed with asthma at the age of 5 and his mother thinks that it was triggered off by a really bad cold. His asthma is mild and he is not on regular medication but he uses his inhaler before doing sports. He sees a specialist nurse once a year for check ups.

  • Background

    David is a A-level student and plans to go to university. Lives at home with his parents and his brother. He swims and does other sports on a regular basis....

  • Age at interview 18
  • Sex/Gender Male
  • Kate - Interview 19

    Kate was diagnosed with Cystic Fibrosis (CF) when she was 4 years old by a new consultant who spotted the symptoms straight away. Previously, she had been misdiagnosed with other conditions such as asthma and a milk allergy. Kate has very few CF related symptoms and although she has had the odd chest infection, she has never required intravenous antibiotics.

  • Background

    Kate is very busy with her final year at university and she also works part-time. Lives at home with her parents. Ethnic background/nationality: White British.

  • Age at interview 21
  • Sex/Gender Female
  • Jodie - Interview 18

    Jodie has cystic fibrosis (CF) and was diagnosed with CF related type 1 diabetes in her early teens. Of the two conditions she finds her diabetes the harder to control particularly because she has a very active life. She finds that the specialist care she received is brilliant. She remains thankful for all the nagging she got from her Dad and her children's consultant.

  • Background

    Jodie is in her final year at university and also works part-time for an insurance company. She plans to go on to do a PhD and wants to be a...

  • Age at interview 21
  • Sex/Gender Female
  • Joseph - Interview 17

    Joseph was diagnosed with Enthesitis Related Arthritis at the age of seven. After initial remission his condition flared up again and it became more difficult to control. He was started on a new drug, Enbrel and has been on remission for the last two years.

  • Background

    Joseph finished his AS levels he will go on to do his A-levels. After that he plans to go to university. He lives with his parents and has an older...

  • Age at interview 17
  • Sex/Gender Male
  • Mica - Interview 16

    Mica has lived with sickle cell anemia since birth. Her Mum and her brother also have the condition. Her mother has played an important role in helping Mica and her brother to develop a positive attittude towards having sickle cell anaemia. Mica says that she now feels in control of her condition.

  • Background

    Mica lives with her mother, a brother and a sister. Mica is at college studying for her A2 levels. She does Drama and Dance and in the future plans to...

  • Age at interview 17
  • Sex/Gender Female
  • Elizabeth - Interview 01

    Elizabeth was diagnosed with scoliosis at the age of 16. She now works for a Department of Health funded project. She says that as a teenager she 'rebelled' against her condition and stopped taking her painkillers. Her attitude now is to work with her condition rather than against it. She takes regular exercise and does a lot of walking.

  • Background

    Elizabeth lives at home with her family – mum, dad and younger sister plus two cats. Ethnic background/nationality: White British. At university she applied for Disabled Student Allowance and says...

  • Age at interview 22
  • Sex/Gender Female
  • Lynsey - Interview 14

    Lynsey was diagnosed with Cystic fibrosis at birth and says that her parents and now her husband are most supportive. She and her husband would love to have a child and they have discussed all the implications involved in such a decision.

  • Background

    Lynsey lives with her husband and works full-time as an Expert Patient Adviser for the Cystic Fibrosis Trust. Ethnic background/nationality: White British.

  • Age at interview 23
  • Sex/Gender Female
  • Nicola - Interview 13

    Nicola has moderate asthma and needs to take her inhaler everyday to keep her symptoms under control. She does not get many asthma attacks now, but is prone to developing bronchitis which can last for up to a week. Nicola recently saw an asthma nurse and found it most useful. It provided an opportunity to discuss her asthma and treatment in detail.

  • Background

    Nicola studied journalism and public relations and now works for a PA consultancy. She shares a house with other young professional girls. In her experience most people know about asthma....

  • Age at interview 24
  • Sex/Gender Female
  • Jamie - Interview 12

    Jamie has a heart condition called hypoplastic left heart syndrome. He was diagnosed when he was six days old and underwent pioneering and life saving surgery. He gets breathless very easily and is not allowed to play any contact sports. Jamie absolutely loves football so at home he plays it in the garden with his sister and a neighbour.

  • Background

    Jamie lives with his parents and his two sisters. He is not allowed to play any contact sport but he does swimming, cycling and he plays golf once a week....

  • Age at interview 15
  • Sex/Gender Male
  • Rollo - Interview 11

    Rollo thinks that what triggered his ME/CFS was an overdose of vaccinations that he had received at school prior to travelling to Asia. Following this he started having joint pains and became very emotional. He was diagnosed with ME/CFS by an 'alternative practitioner' a few years after getting ill. Says that ME/CFS affects different people in different ways and that doctors should learn to recognise that.

  • Background

    Rollo is a university student and has been living with ME/CFS since the age of fifteen. During term-time he lives in a shared household with other students but he regularly...

  • Age at interview 23
  • Sex/Gender Male