Here, you can find any of the interviews on this site.
Audrey first noticed symptoms 11-12 years ago. Diagnosis confirmed three years later (1995). Still living at home with support from a daily carer and respite care in a hospice.
Audrey is a retired post office clerk, widowed, with 2 grown-up stepchildren. Ethnic background/nationality: White British.
Jack was diagnosed with MND a year before interview (2003), after some years of leg pain and stiffness. Symptoms have progressed slowly, still mainly leg weakness. He now uses a walking frame. (Wife Mary present, also interviewed separately MND04).
Jack is a retired graphic designer, married with 3 adult children. Ethnic background/nationality: White British.
Liz was diagnosed with rare inherited (familial) form of MND 8 years ago (1998). Sixth member of her family to be diagnosed. Has weakness in her arms and legs, and some speech difficulties. Has a PEG but does not use it yet.
Liz is a former classroom support worker for special needs, divorced, with 2 children aged 18 and 17. Ethnic background/nationality: White British.
Sue was diagnosed with bulbar onset motor neurone disease less than a year ago (2006). She is now unable to speak and uses a laptop with voice software. Her arms and legs are still relatively strong.
Sue is a retired business administrator, married with 4 children aged 37, 33 and twins aged 22. Ethnic background/nationality: White British.
Slawomir was diagnosed 3 months ago, 18 months after first noticing weakness in his leg. He wonders if he may in fact have Lyme Disease. He can still walk and drive.
Slawomir is a company director, divorced with 1 son aged 16. Ethnic background/nationality: Polish.
Shyam was diagnosed with MND about six months ago (2006). He has difficulty walking and uses a wheelchair. His speech is slowing down and his voice is changing.
Shyam is a graphic designer/book illustrator, married with 1 adult daughter. Ethnic background/nationality: Indian British.
Sandy was diagnosed 5 years ago (2002) after noticing weakness in one arm. His arms have been worst affected, and now his speech and neck muscles are deteriorating, but he can still walk well.
Sandy is a retired Royal Navy sub-mariner, married with 2 adult children. Ethnic background/nationality: White British.
Peter was diagnosed three years ago (2004). Symptoms started in his arms and hands, and progressed to his legs. He now uses a wheelchair full-time.
Peter is a retired civil servant, married. Ethnic background/nationality: White British (Polish origin).
Roger's wife Luise was diagnosed in 2004 aged 59, after a year of weakness in her fingers and leg. Roger and his sons cared for Luise at home until her death in 2006.
Roger retired from graphic reproduction for the printing trade, widowed, with 2 adult sons. Ethnic background/nationality: White British.
Peter's daughter Olivia (aged 22) died within a year of developing pain and weakness in her leg, in late 2006. Diagnosis of MND remained uncertain, as aspects of her condition were unusual.
Peter is a consultant (heritage projects), married, father of Olivia and one other grown-up daughter. Ethnic background/nationality: White British.
