Profiles

Here, you can find any of the interviews on this site.



Fiona & Mike

Fiona and Mike's daughter was diagnosed with an exomphalos*. After birth she developed several complications and was in hospital for the first 10 months of her life. But she has recovered well and is now 7 years old and thriving at school.

  • Background

    Fiona age 36 is a childminder. Mike aged 34 is a salesman. They are married with two children.

  • Jane

    Janess daughter was diagnosed with exomphalos* when she was 16 weeks pregnant. She was 8 years old at the time of the interview.

  • Background

    Jane works in radio, with two daughters.

  • Amy

    Amy's daughter was diagnosed with exomphalos* when she was 15 weeks pregnant. She was 6 years old at the time of the interview.

  • Background

    Amy is a social worker. She lives with her partner and their daughter.

  • Age at interview 39
  • Claire

    Claire's second son was diagnosed with exomphalos* when she was 15 weeks pregnant. He was 18 months old at the time of the interview.

  • Background

    Claire is an occupational therapist, married with two children.

  • Age at interview 34
  • Stacey

    Stacey, who has learning disabilities and asthma is 20 weeks pregnant with her first children. Her pregnancy has been fine although she is now on iron tablets.

  • Background

    Stacey is 20 weeks pregnant and is having a baby boy.

  • Age at interview 25
  • Sex/Gender Female
  • G

    G is living with epilepsy. She has two children: her son is 6 and her daughter is 1 year old. G's experiences with health services during her pregnancies were mostly positive. She is also happy with the social support she received from her friends and her husband's family.

  • Background

    G has a son, aged 6, and daughter, aged 1.

  • Age at interview 37
  • Sex/Gender Female
  • Clarissa

    When Clarissa gave birth to her fourth child, she had a placental abruption. She had to stay in the hospital afterwards, and her baby was put in an incubator. Clarissa has had generally positive experiences with health and social services. She feels that she has been provided with all the support she needed.

  • Background

    Clarissa has four children and is pregnant with her fifth.

  • Age at interview 24
  • Sex/Gender Female
  • Tina

    Tina has been living with epilepsy. She had mixed experiences with healthcare support during her pregnancy. She feels healthcare staff should have more awareness of mothers with learning disabilities, and wishes she had been provided with more information on antenatal care.

  • Background

    Tina is a mother of one. She lives with her child and her partner, with whom she’s been together for a year and a half.

  • Age at interview 33
  • Sex/Gender Female
  • Gemma

    Gemma had three different pregnancies. Her first son was 6 weeks premature after her waters broke, her second son was born without complications and her third son was born 2 weeks early after bleeding during the pregnancy.

  • Background

    Gemma and her husband have three sons aged 6, 4 and 6 months. Gemma is a full time mother and her husband works as a tyre fitter.

  • Age at interview 29
  • Sex/Gender Female
  • Nicole

    Nicole had a baby daughter by caesarian section after a difficult pregnancy. The child, now 2, lives with her ex-partner in a different part of the country.

  • Background

    Community Project Assistant. I’m single with one child with learning disabilities. My daughter is not living with me, she is living with the father and I am in the process...

  • Age at interview 30
  • Sex/Gender Female