Here, you can find any of the interviews on this site.
Jade was part of a twin birth cohort study. She stopped taking part in the study at age 12 but cannot remember why or how this was communicated to the research team. She is considering rejoining the study.
Jade is a student. Ethnic background: White English
Lucy was a part of a longitudinal medical study. As part of involvement, she had pictures of her moles and freckles taken. At first she found this interesting, but as she got older it caused concern about whether they could be cancerous.
Lucy is in relationship and has one child. Ethnic background: White British
John has been part of a cohort study for ten years. Through the study, he took part in some research about using MRIs and, through this, he learnt more about his brain health.
John is married and has one child. He is a retired science filmmaker. Ethnic background: White British.
Gill was invited to join a women's health cohort study after taking part in a short study about ovarian cancer. Her participation involves answering questionnaires. Her motivation for taking part is to benefit other people.
Gill is married and has three children. She is a retired couples psychotherapist. Ethnic background: White English
Barbara has been part of a birth cohort study for over 70 years which started when her mother was pregnant. She feels privileged to have taken part and has always found her involvement interesting. She feels part of a club.
Barbara is widowed and a retired media researcher. Ethnic background: White British
Margaret is part of a birth cohort study. She has met other participants recently at gatherings. She is very proud to be a part of the study and has no concerns about giving consent to be in the research.
Margaret is married and has two children. She is a retired headteacher. Ethnic background: White Scottish
Teresa is part of a birth cohort study. She recalled a time when a research nurse unexpectedly threw a packet of matches at her to test her reflexes. She thinks the process of being consented into research can be overdone.
Teresa is an artist printmaker. She is married. Ethnic background: White British
Brian is participating in a birth cohort study and a biobanking study. He has received regular feedback from the birth cohort study over the years and recently he has been consulted on the next stage of the research which is focusing on ageing.
Brian is married with two children. He is a retired chartered civil engineer. Ethnic background: White British
Luke is part of a twin cohort study which involves study visits every four years and an annual questionnaire. He expresses caution about how the data is used, who gets to use it, and how research findings are communicated.
No details given.
Alan Z is part of a 5-year renal (kidney) cohort study. His participation has included blood tests and answering questions at his GP surgery. He is motivated to take part in the study to help society and improve medical knowledge.
Alan Z is a retired electrical engineer. He is married and has two children. Ethnic background: White English
