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Dean has Hughes-Stovin syndrome, a very rare type of systemic vasculitis. It has mainly affected his lungs, and he has to take life at a slower pace than before.

  • Background

    Dean had worked in the retail sector since leaving school but has been unable to return due to ill-health. He lives with his wife and son. Ethnic background: White British.

  • Age at interview 47
  • Sex/Gender Male
  • Nicola

    Nicola has microscopic polyangiitis (MPA), a type of ANCA associated vasculitis that has affected her kidneys. Fast action by her GP meant that she was diagnosed and began treatment in less than a week.

  • Background

    Nicola, a former teacher, is chief executive of a charity that offers baby loss counselling and support to families. She lives with her husband and two sons. Their newborn son,...

  • Age at interview 46
  • Sex/Gender Female
  • Sharon

    Sharon has microscopic polyangiitis (MPA) PR3, a type of ANCA associated vasculitis. This affected her kidneys badly, and she has had a kidney transplant. She says she can do the things she enjoys by planning carefully and always being ready to adapt.

  • Background

    Sharon worked full-time in early years education. She hoped to return but ill-health has made this impossible, and she resigned three months ago. Sharon is married with three grown-up children....

  • Age at interview 49
  • Sex/Gender Female