Profiles

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Caitriona

Caitriona has juvenile idiopathic arthritis (JIA). She spent many months trying to find a diagnosis. She experienced depression because of her sudden loss of mobility, pain and weight-gain. Arthritis Care helped Caitriona to be confident in public and she now volunteers for the charity by giving advice and talks to other young people.

  • Background

    Caitriona is a full-time university student studying law and politics. She also volunteers for Arthritis Care. She is white Irish.

  • Age at interview 19
  • Sex/Gender Female
  • Elizabeth

    Elizabeth was diagnosed with arthritis when she was 18 months old. She experiences pain and swelling in her ankles, elbows, jaw, wrists and fingers. She has had her hip replaced. She takes Humira (adalimumab) injections, lefludomide tablets and steroid injections.

  • Background

    Elizabeth is a full-time university student. She is white British.

  • Age at interview 18
  • Sex/Gender Female
  • Zoe

    Zoe has juvenile idiopathic arthritis rheumatoid factor positive. This affects her feet, legs and hands. She also has fibromyalgia and chronic fatigue syndrome. This combination of conditions makes her extremely tired.

  • Background

    Zoe is a GCSE student. She is white British.

  • Age at interview 15
  • Sex/Gender Female
  • Charlotte Z

    Charlotte has juvenile idiopathic arthritis polyarticular with a rheumatoid factor positive. When she was at her worse she was in lots of pain and struggled with depression. Her medication helps take the edge off the pain and she finds happiness in helping others with the condition.

  • Background

    Charlotte is a student at college studying a BTEC in Forensic Sciences. She is white British.

  • Age at interview 17
  • Sex/Gender Female
  • Sabrina

    Sabrina has juvenile idiopathic arthritis and once experienced pain and swelling in her jaw, neck, legs and feet. She used to take methotrexate. She has learned to cope with her pain and stopped taking her medication when she was 14.

  • Background

    Sabrina is a school student. She is of Pashto heritage.

  • Age at interview 16
  • Sex/Gender Female
  • Beth

    Beth has juvenile idiopathic arthritis. She was diagnosed when she was four years old. She used to take methotrexate and Enbrel injections but is now trying to live without medication.

  • Background

    Beth is a school student. She lives with her parents and is White British.

  • Age at interview 13
  • Sex/Gender Female
  • Anna

    Anna is a thirteen year old girl who has juvenile idiopathic arthritis. She was diagnosed four months before being interviewed. Her arthritis is not currently being controlled by her medication.

  • Background

    Anna is a school student. She lives with her parents and brothers. She is white British.

  • Age at interview 13
  • Sex/Gender Female
  • Gemma

    Gemma with juvenile idiopathic arthritis in 1998 when she was 20 months old. She no longer takes methotrexate because she has not had a flare up for over a year. She is being treated for uveitis (an inflammation of the iris and surrounding tissue). She stays active and enjoys climbing and Zumba.

  • Background

    Gemma is a school student and lives at home with her parents. She is white British.

  • Age at interview 15
  • Sex/Gender Female
  • Charlotte X

    Charlotte has juvenile idiopathic arthritis (JIA). She was upset and confused when she was first diagnosed. She did not want to be different form her friends. She takes Enbrel (etanercept) which helps and is doing well at school.

  • Background

    Charlotte is a school student who lives with her mum and dad. She is white British.

  • Age at interview 14
  • Sex/Gender Female
  • Jenna

    Jenna has polyarticular juvenile idiopathic arthritis (JIA). She is on a medical trial for the drug tocilizumab and has improved lots since being on it. Jenna remains positive about her arthritis.

  • Background

    Jenna is a student studying for her GCSEs. She lives with her parents and younger sister. She is white British.

  • Age at interview 14
  • Sex/Gender Female