Beth

Beth has juvenile idiopathic arthritis. She was diagnosed when she was four years old. She used to take methotrexate and Enbrel injections but is now trying to live without medication.

Beth has juvenile idiopathic arthritis. She was diagnosed when she was four years old. She had problems with most of her joints but her toes, ankles, knees, wrists and fingers were the worse. A nurse used to come to Beth’s home to give Beth methotrexate injections. Because Beth was sick after each injection the doctors decided that she should try Enbrel (etanercept) injections instead. Beth’s mum and granddad used to mix the medicine and then Beth injected herself with an EpiPen. Beth was never sick after taking the new medicine. When Beth had a bad flare-up she would go into hospital for steroid injections in her joints. The doctors put her to sleep before her steroid injections.

At the time of the interview Beth’s arthritis had improved lots and she stopped taking her medication. She said she could live with the pain in the morning and when the weather was cold. Shortly after the interview Beth got worse. She returned to hospital and was given 24 joint injections. Her doctors also put her back on Enbrel at a higher dose

During the interview Beth said that she did not mind going to hospital and described it as her second hom. She has blood tests twice a month in hospital. She has known some of the nurses since she was first diagnosed and finds them friendly and easy to talk to. She finds it easier talking to her nurses about arthritis than her friends and family.

Beth is very arty. She enjoys drawing, painting, photography and video editing. She really enjoys dancing and practices different styles (contemporary, ballet, street and hiphop). She is also happy to crash out in front of the TV and watch movies. When she is older Beth would like to go to an art college to study photography. She hopes that her arthritis will not get in the way of her dancing when she is older

Now Beth is older she may have steroid injections when she is awake, but she would rather be asleep.

Age at interview 13

Gender Female

Age at diagnosis 4

Beth enjoys her food and could eat all day but she tries to exercise too.

Age at interview 13

Gender Female

Age at diagnosis 4

Beth doesn’t like to talk about arthritis because she doesn’t want other students treating her…

Age at interview 13

Gender Female

Age at diagnosis 4

Beth feels like she knows a lot about her condition as people taught her about arthritis when she…

Age at interview 13

Gender Female

Age at diagnosis 4