In this section you can find out about the experience of antenatal and newborn screening for sickle cell, beta thalassaemia and other haemoglobin variants by listening to people share their personal stories on film.

Our researchers travelled all around the UK to talk to 39 people in their own homes. Find out what people said about issues such as partner screening, telling people you’re a carrier, living with sickle cell and sources of support.

We hope you find the information helpful and reassuring.

There are interviews in English as well as Urdu: Interview 22, 30, Mirpuri: Interview 21, 24, Sylheti: Interview 16, Français: Interview 14, 18, 20, and Português: Interview 25.