Simon – Interview 08

Simon’s foreskin had been tight for some time, he decided to bring this up when attending his GP for another ailment. After a period of monitoring, he was referred to a specialist who performed tests. The results revealed Simon had cancer. Simon went on to have a total penectomy.

Simon had recently been diagnosed with AF (atrial fibrillation) and was attending his GP surgery with a chest complaint. Simon’s foreskin had been tight for some time, but up until this point he had delayed any action, he decided to mention it to his GP. Simon’s doctor did not think that the problem was anything too serious, suggesting that if he could still get an erection there was nothing to worry about. Accepting his doctors opinion, Simon carried on as normal until green smelly discharge began seeping from his penis, Simon was extremely alarmed and began to panic.

Simon returned to his local GP surgery and saw a different doctor. This time the doctor appeared to be more concerned and referred Simon to see a specialist urologist. A fortnight later, Simon attended a local hospital with his wife for a consultation. After a brief wait Simon was called to the consultants office, he was expecting bad news and thought that he may be required to have a circumcision. The consultant gave Simon an examination and almost immediately told him, bluntly, you’ve got cancer’. Simon was shocked and his wife was very upset.

The consultant told Simon that he would conduct a small operation to take a tissue sample to be tested, a biopsy, Simon was told this would provide a more concrete diagnosis. Simon was asked to wait at the hospital until the evening to have the biopsy. Then, around half past seven Simon was called into surgery. The operation was conducted under local anaesthetic and therefore Simon was fully conscious throughout, but felt no pain. When Simon saw the results he was alarmed to see that half his penis had been removed.

Simon found the wait for the biopsy results extremely difficult. He was still working and struggled to manage the bleeding and discharge from his penis. Approximately a month later the results of the biopsy had come back and Simon was asked to attend an appointment at the local cancer hospital. At the appointment the consultant confirmed the original diagnosis and advised Simon that he should have a total penectomy, a total removal of the penis. This news was more shocking than anything that had happened previously. Simon felt that the only real option he had was to have the surgery and was booked in for an operation two weeks later.

Leading up to the operation Simon was quite scared, and feared he could die. The operation was performed under general anaesthetic and therefore Simon was fully unconscious. After the penectomy, Simon stayed on the ward for two weeks to be monitored.

Since the penectomy, Simon has required a further operation to remove his sentinel lymph nodes. He found this operation quite invasive and sore afterwards. After recovery Simon has been able to continue his employment and whilst he has been able to urinate standing up with the use of an aid, he sometimes finds this difficult to manage when out and about. Simon also has had several urinary infections which have been quite painful. One of Simon’s biggest concerns since the operation has been the impact the operation has had on his relationship with his wife, and he worries about her wellbeing. Simon however, tries to maintain a positive outlook and is hopeful that he will be okay in the long term.

Simon has check-ups about every four months where he is examined. He has the support of three…

Age at interview 65

Gender Male

Age at diagnosis 63

Simon was grateful he had been given a new opening for his urethra in his groin rather than…

Age at interview 65

Gender Male

Age at diagnosis 63

Simon would like health professionals to give patients a bit more time when revealing a diagnosis.

Age at interview 65

Gender Male

Age at diagnosis 63

Simon was quite scared leading up to the operation.

Age at interview 65

Gender Male

Age at diagnosis 63

Simon had been self employed and didnt have sickness insurance, so he closed his company, moved…

Age at interview 65

Gender Male

Age at diagnosis 63

The worst that Simon was expecting was that he might need a circumcision, so he was shocked to be…

Age at interview 65

Gender Male

Age at diagnosis 63

Simon was worried when he received his diagnosis, but when he got to the cancer hospital he felt…

Age at interview 65

Gender Male

Age at diagnosis 63

Simon has found it difficult passing water and he has had a couple of urinary tract infections.

Age at interview 65

Gender Male

Age at diagnosis 63

Simon didnt expect so much of his penis to be taken away when he had a biopsy performed.

Age at interview 65

Gender Male

Age at diagnosis 63