Nozipho
Nozipho found out she had HIV in 2013 after going for tests for a suspected yeast infection. On the basis of her medical history, doctors suggested that Nozipho probably had HIV from birth. She formula fed her baby even though this had not been her plan.
Nozipho remembers she was a very, very ill chil but was never admitted to hospital for anything. When Nozipho found out she had HIV, she told her mother and her grandmother about it. Her mother wasn’t very supportive, and her grandmother told her You were very sick, we suspected it When Nozipho told her father he told her he has it too. Nozipho then found out her mother also has it but didn’t want to say. Her fiancé doesn’t really kno about her status; she has not told him she has HIV but she does not hid her HIV medication either.
Nozipho became pregnant while she was abroad and was in her second trimester when she came back to the UK. Nozipho likes to do internet research herself and found out before she was even pregnant that mothers with HIV are able to breastfeed. When she became pregnant, the midwives were telling her to formula feed because the water is good here, and she can get free milk, but she fought it all the wa because she wanted the bond of breastfeeding her child.
However, when Nozipho gave birth, she was exhausted and when a nurse asked her about giving her baby some formula milk, she agreed to it in that moment. Unfortunately, once this had happened, she was told that the 2020 BHIVA guidelines discourage mixed feeding;, and so she could not breast feed anymore. Nozipho was then prescribed a pill to dry up her milk, and she still feel very disappointed about this episode.
Nozipho gets support from an HIV charity; she used to attend a support group but has stopped going because another member of the group did not keep confidentiality. She still keeps in touch with the support worker, though.
For a while Nozipho did not know that she could get free milk from an HIV charity. Her healthcare team told them formula milk had to be bought from the pharmacy, and this caused a lot of confusion, and her fiancé spent a lot of money on formula milk. A few months later, Nozipho’s HIV support worker advised her how to get the milk for free.
Nozipho says friends and other people have asked her why she is not breastfeeding and she told some that it was due to blisters or because her baby couldn’t latch on. With people she doesn’t know well, she told them she had breastfed for the first few months.
Nozipho says that the Covid pandemic has had positives and negatives for her. While she loved having some peace and not being pressured to do anything, she also felt she was not taken care o by the healthcare system because of the pandemic restrictions.